• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. DCinWV

    A Proven Treatment-Cure for Chronic Epsten Barr Virus

    @drob31 sorry. I didn't take it as a joke but as making fun of me. I haven't been feeling well and my boss instead of being understanding and letting me have some days off of work so I don't get too run down when I tried to explain that I get way more tired than I should and that I can't keep...
  2. DCinWV

    A Proven Treatment-Cure for Chronic Epsten Barr Virus

    That is a very nice response coming from a senior member. Very helpful and insightful. And not at all condescending.
  3. DCinWV

    Doctors that treat CFS (SEID) in West Virginia.

    Thanks again for everyone's input. I'm not sure what I'll do. I did by the book from Fatigued to Fantastic since there were only two or three books at the local bookstore (50 miles away) on CFS. I tried the walking test as suggested above and didn't have a problem with my eyes closed. I...
  4. DCinWV

    Doctors that treat CFS (SEID) in West Virginia.

    Thank you. I'll see if my doctor will refer me to Dr. Teitelbaum.
  5. DCinWV

    Doctors that treat CFS (SEID) in West Virginia.

    Thanks for everyone who responded. I don't have insurance that will pay out of state. I'm mainly wanting to see a specialist because now that my family doctor has decided that I have CFS she has stopped looking for anything else. I'm not saying I don't have CFS because I might well have it but...
  6. DCinWV

    A Proven Treatment-Cure for Chronic Epsten Barr Virus

    Would love to try the original self-help above and actually have tried several of the supplements before but not together. Unfortunately, I have a lot of sensitivity to medicines/supplements/chemicals and I can not take at least three of the supplements mentioned plus I live in a very rural area...
  7. DCinWV

    What is this horrible metallic taste??

    I get a terrible taste in my mouth. Sometimes it tastes like metal. Usually it progresses till nothing I eat tastes good. Sometimes it gets so bad I can't eat anything. You might read this http://www.webmd.boots.com/oral-health/guide/metallic-taste-bad-taste I Didn't really see anyone else...
  8. DCinWV

    Doctors that treat CFS (SEID) in West Virginia.

    Hello all. I hope everyone is feeling the best you can feel today. I live in a very rural part of WV and have been unable to find a doctor in the state or around the state to see for my chronic fatigue. My regular doctor diagnosed me with CFS a month ago after me being exhausted since 2010...