• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

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    memory loss and other cognitive issues in daily life

    Hey everyone, Over the last 6 months, I've been experiencing a progression of my cognitive problems. It gets me really insecure and creates tons of fear as well. See here some of my examples: 1) Memory: Watching a serie on tv a few months ago, seeing it again, but not remembering what...
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    Bradycardia (slow heartrate) with ME?

    Hmm I used to sport a lot as well @TiredSam, but my heartrate was always good (around 75). It's just in the last 1.5 years it started dropping and now it's about 45 in rest, when sleeping it drops to 40 and sometimes even under. Although sometimes when I'm almost falling asleep, I start to get...
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    Bradycardia (slow heartrate) with ME?

    Hey there, I just got a quick question. Is there any of you who has bradycardia, which is a far slower heartrate than usual. Normally it's between 60-80 in rest and someone with bradycardia has below 50. I've had this since about 1.5 years. It comes with a lot of symptoms like pressure on the...
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    Fear for a worsening disease?

    Thanks, I have seen it! Thanks for your response! It makes sense what you say about steroids. It's just that I want these mush (that's the word I was searching for) muscles are litterally so bad that if I pick e.g. the skin of my calf up, i pull my entire muscle up, because it's just a lot of...
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    Fear for a worsening disease?

    Hey @alkt @Sushi @Valentijn @taniaaust1 @ryan31337 @CantThink @Mel9 @Thomas thanks a lot for your replies and sharing some of your stories, that helps me a lot. When I read most of your stories I see that all of you have had very severe FLU's. From what I can read from your stories is that...
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    Fear for a worsening disease?

    Hey everyone, I'm quiet new to this forum, but I've got a question. What I would like to know is if you guys have had quiet the same symptoms from the start until now, or that you've had totally different symptoms at different specialisms (e.g. cardiologist, neurologist, rheumatologist...