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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. L

    B12 question, sorry im new

    Thank you for all your help
  2. L

    B12 question, sorry im new

    Sorry also i have considered it is only b12 but my doctor doesnt believe low levels produce these symptoms and refuses to even go back to a monthly schedule
  3. L

    B12 question, sorry im new

    Thanks for replying it was the quick drop to 200 over three months that i found concerning, kind of suggests that im not storing it. I am on cyanocobalamin. I read in another thread about the b12 oils and am going to try that but im a bit freaked out now. There is so much information and it...
  4. L

    B12 question, sorry im new

    Hi, 2 years ago cfs was something i was diagnosed with along with other things, b12 deficiency being one, after 6 months of monthly injections i was changed to 3 monthly. My b12 measured 1400 a week after my injection, 3 months later i was at 200. My symptoms are worse then ever. My doctor...