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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. T

    My Experience with Pyroluria and Copper overload-A Misfit Toy-Again.

    oh okay good to know. well keep it up and keep us all posted with any progress you're making :)
  2. T

    My Experience with Pyroluria and Copper overload-A Misfit Toy-Again.

    Hey Misfit, so were you taking magnesium while you were doing this protocol at first when you were being kept up all night by the B-6/P-5-P? Permanent scarring on your butt?! Man that sucks. Maybe it will go away once you are zinc and manganese sufficient, after decoppering yourself. Did...
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    My Experience with Pyroluria and Copper overload-A Misfit Toy-Again.

    okay, so on further reading of Walsh's Nutrient Power book (which I've read many parts over and over before), I realized I might be wrong in saying that an acquired pyrrole disorder may not be as severe as a genetic one that you were born with. I was reading about schizophrenia but this might...
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    My Experience with Pyroluria and Copper overload-A Misfit Toy-Again.

    okay sorry, I understand, will do :)
  5. T

    My Experience with Pyroluria and Copper overload-A Misfit Toy-Again.

    Misfit Toy, I was thinking that potentially part of your problem with the protocol (besides the B-6 and P-5-P seeming to be too much for several reasons that i could post later if you'd like), specifically the total insomnia from the B-6/P-5-P, could be magnesium related. It seems you should've...