• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. 1

    What job do you have?

    Yes, I have gathered that most are unable to work. It's tough. I had to pause my studies to recover from a relapse, but that has been my only disruption (in terms of money sources taking a hit). I work part-time, but I want to work full-time because I need more money. I just have no idea what...
  2. 1

    What job do you have?

    If you're a working person, @Wonko
  3. 1

    What job do you have?

    I'm interested in seeing what jobs people with CFS have! Please share, if you wouldn't mind. I am a stock assistant. I work mostly at the back. I unload deliveries, unpack it and replenish the stock. It's for a home furnishings store, so that includes handling paint, rugs, curtains, etc as...
  4. 1

    People with mild CSF/ME

    @TiredBill I still get fluish and am sensitive to my surroundings. I am wearing special glasses right now to help light sensitivity, for example! Smells are awful for me too, as well as vibrations. I think our levels for anyone who feels they have mild or manageble symptoms is probably all...
  5. 1

    People with mild CSF/ME

    I can empathise to a degree. I have chronic migraines. It does not compare experience-wise to people who get the odd migraine, even up to once a week. At the same time, I've never once been disrespectful towards people who talk to me about it. I don't engage in what I understand now to be the...
  6. 1

    Is it possible to get your life back? Has anyone here done it?

    I echo that, @TiredBill ! That has been exactly that for me. I'm a little more extroverted too, but I learnt to find joy in the introverted life. I am a big film watcher. I socially watch films, but I have learnt to enjoy it by myself too. Things like that. For the times when I can't socialise...
  7. 1

    Is it possible to get your life back? Has anyone here done it?

    I'm similar to @TiredBill, except that I am struggling to manage work with social life. I went from stuck in bed and the house to working a physical job (30hrs, five days a week). This is within a two-year time-frame. I don't know when I developed CFS/ME. Sometime six years+ ago. My migraines...
  8. 1

    People with mild CSF/ME

    Hello all. I was wondering if there are any fit / active people with CFS/ME around? I have met a few people with this condition before and since my diagnosis. But honestly I feel very alone still because it doesn't seem like anyone can share my experience. It is believed I developed CFS/ME...