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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. P

    Best place on earth for CFS

    And how expensive is food and living when staying long term?
  2. P

    Best place on earth for CFS

    Seems truly promising. What about risk of diarhea? It it is close to Egypt. Sharm in Egypt is not OK? It is close, cheaper and hotter. Thank you
  3. P

    Best place on earth for CFS

    And what do you think about malaria and such things? Is that serious issue for CFS? I would stay there just in winter when it is no rainy and no humidity and hopefully no mold. And in summer I would live in our cottage :)
  4. P

    Well ventilated room while sleeping in winter?

    Thinking about that the easier solution would be to sleep under pile of blankets as @Cheesus suggested + scarf on neck and cup on head and to sleep with opened ventilation in window. Isnt this the best solution? Or cold air by itself will make me sick? :(
  5. P

    Air purifiers

    Hello, @SickOfSickness do you think it is truly worth the investment? Is it usual that it helps people with CFS?
  6. P

    Well ventilated room while sleeping in winter?

    So for me the easier solution would be to buy this: https://www.amazon.com/hepa-air-purifiers/b?ie=UTF8&node=510192
  7. P

    Well ventilated room while sleeping in winter?

    I can open window this way. https://www.google.gr/search?q=plastic+window&client=firefox-b-ab&biw=1525&bih=736&source=lnms&tbm=isch&sa=X&ved=0ahUKEwjR15GOqpbQAhXBBiwKHQZfBboQ_AUIBigB&dpr=0.9#imgrc=hhXHfnR4hFywTM%3A But it still could be too much. Maybe it is somehow adjustable, dont know. PS...
  8. P

    Well ventilated room while sleeping in winter?

    And one more question. Is there any matress recomended for CFS :-)? How much is worth to invest in it?
  9. P

    Well ventilated room while sleeping in winter?

    Yes but I get cold very easily and not sure if additional featherbeds may prevent it when breathing that cold air? @Mary - Thank you. I will think about the investment :-). I think bad air is one of the reasons why I have "depressions" at home in winter. And feel that relief when going out to...
  10. P

    Well ventilated room while sleeping in winter?

    Hello, would like to ask, how do you manage ventilation in winter (if you live somewhere where in winter it is often bellow freezing) to have good night sleep and not to get cold? With my MCS I truly need to figure this out. I dont have termostat at home so this is a bit complicated. How to...
  11. P

    how to overcome sensitivity to humidity?

    Where did you find that place with just 15% humidity? :-)
  12. P

    Dating...

    Girl. But if I find just friend would be glad as well.
  13. P

    Dating...

    Hello, found this thread and would like to share myself. Who know who will see this message: I am 26 year man and have these sympthoms: 1. Leaky gut 2. Almost chronic burnout. Burned out very easily. 3. General weakness (toxins, termoregulation etc.) 4. Anxieties very very often 5. Generally...
  14. P

    Best place on earth for CFS

    Cyprus is fine. But only for 5 or six months a year. It is slightly better than Rhodos or Crete but also more expensive. So I am on Crete for now. According to temperature I think that in European union the best is: 1. Gran Canaria 2. Cyprus 3. Crete / Rhodos But on the other hand comparison...
  15. P

    Best place on earth for CFS

    What about Cape Verde for CFS? http://www.holiday-weather.com/cape_verde/averages/ Hot enough Not much rainy Close to europe Not that much expensive it looks -> https://www.numbeo.com/cost-of-living/compare_cities.jsp?country1=Czech+Republic&country2=Cape+Verde&city1=Prague&city2=Praia But not...
  16. P

    Best place on earth for CFS

    No, my plan is not to move completely BUT to live there for example 4 months a year or something like that. I can imagine it becouse this year I was 1 month on Rhodos island and now I am 6 weeks on Crete island. So that is possible for me for sure. I found on myself that my leaky guts improve...
  17. P

    Best place on earth for CFS

    These islands are quite cold in winter :(. I am now on Crete and it is not what I expect to be.But in summer it is fine there. I need to spent time in winter definately somewhere. My nervous system is in fight or flight / anxieties etc. in winter all the time. I cant be there in winter...
  18. P

    Best place on earth for CFS

    Hello, I am from Czech republic but I think and believe that it is not the best place for living with CFS becouse: 1. The winter is long and cold 2. No SEA 3. There are high temperature swings And my question would be what do you think is the best place for CFS sufferer to live? I would like...
  19. P

    The Best Drug for ME/CFS? The Other Side of Klonopin: A Patient's Story and A Survey

    Thank you. I will need to go to vacation on at least one month where i dont need to take anything. Have a nice day
  20. P

    The Best Drug for ME/CFS? The Other Side of Klonopin: A Patient's Story and A Survey

    Hello, Would like to ask you about what is recommended maximal usage of clonopin lets say per month? I use it only in times of stress. I try to use it not very much lets say once a month but i am considering increasing the dose. Becouse sometimes stress take me into cycle of not sleeping -...
  21. P

    Dr Gordon Skinner, UK?

    Hello, How are you doing now about this experiment or treatment? I wonder bcs I have very similar reaction and expect most of cfs patients would say similar. But T3 only made me interested to try thyroids once again. How are you doing with your treatment please? Better health to all of you :)
  22. P

    Oxidative stress / suplements theory / Dr. Strand

    Could you describe your protocol?
  23. P

    Oxidative stress / suplements theory / Dr. Strand

    Good topic on this: http://forums.phoenixrising.me/index.php?threads/did-vitamins-ever-help-you-get-better-orthomolecular-treatment.36591/page-2
  24. P

    Oxidative stress / suplements theory / Dr. Strand

    Thank you for your replies. Entire book is honestly not much science based and it lack scientific numbers/studies etc. Autor also claims that you need to suplement it all together to see benefits.
  25. P

    Oxidative stress / suplements theory / Dr. Strand

    Hello, would like to ask you what do you think about oxidative stress? I just read this book ( https://www.amazon.co.uk/Doctor-Doesnt-Nutritional-Medicine-Killing/dp/078528883X )about oxidative stress and its relationship to illnesses like MS, CFS etc. The point is the doctor recommends these...
  26. P

    Cured Myself After 4 Years of CFS

    Hello, Could you describe what helped to those who have been cured or partially cured? :) Thank you
  27. P

    Balancing nutrients / electrolytes - looking for specialist in field

    Hello, I did hair analysis where I found many imbalanced nutrients which seems to describe my "metabolism type". So I have few questions about that: 1. Is the theory of balancing nutriets valid? Meaning does it truly help? 2. Do you know some online specialist in field who can help with it...
  28. P

    Experiences with dr Hertoghe?

    I have read his book which was honestly mostly self promo. He does not practise by himself at his clinic at this time from what I heard. But I think his clinic is good think to go I think. But no personal experience. Only considering him as one of the choise in Europe.
  29. P

    Hair analysis and Nutritional Balancing?

    Hello, a little old thread but found threw google so would like to renew with quiestion in my mind. What do you think about it. Is it possible to reverse (just a bit) the tendencies of the metabolism which are draw on hair analysis JUST by suplementing right suplements to correct nutritional...
  30. P

    Where to find people for moving at bay?

    Yes - beach / sea area sorry :)