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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

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    B-12 - The Hidden Story

    Three things : 1) Vitamin B6 is one of those vitamins that can cause toxicity symptoms as well as deficiency symptoms. If you have too much of it you can get neuropathy problems. https://en.wikipedia.org/wiki/Vitamin_B6#Deficiency https://en.wikipedia.org/wiki/Vitamin_B6#Toxicity 2) There is...
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    preparation for wisdom teeth and infected teeth extraction under general anesthesia

    Getting wisdom teeth out will involve bleeding from your gums. That blood is very, very useful. It clots and fills the holes where the teeth were. You need to keep the clots in place for as long as needed. In order for the clots to do their thing you must not wash or rinse your mouth out for at...
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    psychosomatic is the root of all?

    Endometriosis and mental health problems still get mixed up together in jaw-dropping ways. Read this article for a horrendous example : https://www.thesun.co.uk/fabulous/4956962/one-in-10-women-at-risk-of-mental-health-problems-because-endometriosis-resets-the-brain/ I very much doubt that...
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    Psyllium husk

    I've never heard or read of anyone reacting to Slippery Elm before. I'm sorry it didn't help, and gave you a bad night. :(
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    Thyroid hormons T4/T3, someone else taking it for CFS/ME?

    Your Free T3 is approx 1.5% of the way through the reference range. Your Free T4 is approx 40% of the way through the reference range. Your TSH is approx 16% of the way through the reference range. The ratio of Free T4 to Free T3 is (using pmol/L because the units are the same for both) = 13...
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    Psyllium husk

    Yes, I think it can reduce absorption of meds and supplements, just like psyllium husk. Edit : Actually, I don't think it binds to meds and supplements. I think that it coats the mucosal lining of the gut and reduces absorption by reducing the contact between the gut and meds/supplements. But...
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    Psyllium husk

    If you want something to coat your stomach, look into the properties of Slippery Elm. I find it helpful and less irritating than psyllium husk.
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    Do herbs go 'bad'?

    I've bought dried herbs for cooking with many times that were not used within a sensible time period and they smelled like they had turned into compost.
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    Jerks and contractures

    Research the effects of low iron, low ferritin, low magnesium and low potassium. https://en.wikipedia.org/wiki/Restless_legs_syndrome#Iron (Restless legs syndrome doesn't just affect the legs, despite the name.) https://en.wikipedia.org/wiki/Magnesium_deficiency_(medicine)...
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    Does anyone else experience a quiet ticking noise when their head pressure is releasing?

    Have you tried any self-help measures? This video might be helpful : Almost all of the techniques mentioned cost nothing or are extremely cheap and don't require a doctor to try them out. You have nothing to lose by trying them.
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    Does anyone else experience a quiet ticking noise when their head pressure is releasing?

    Have you heard of eustachian tube dysfunction? It's worth googling. https://patient.info/health/eustachian-tube-dysfunction
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    David Tuller: My brief encounter with Prof Crawley

    Fair point. Perhaps DT could write about the situation but keep the participants anonymous?
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    David Tuller: My brief encounter with Prof Crawley

    @Countrygirl Perhaps, ask the mother and the child if they would be prepared to go public, and ask David Tuller if he is prepared to be involved and write up articles on it. (I'm NOT suggesting going to the Daily Fail or any other newspaper, online or off.) If threats are being used they need...
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    Something Strange Happened

    How did you get from your home to your brother's home? Did the journey involve fresh air? Does your home have all the windows tightly closed? Does your brother's home have all the windows tightly closed and yours doesn't? (I'm thinking of pollution? Low oxygen levels? High carbon dioxide?) I...
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    How often do you get twitching eyelids & for how long?

    Magnesium supplements get rid of twitching for me. I use magnesium citrate supplements - my dose varies from 200mg per day up to 400mg per day. I just wish they were a bit smaller and easier to swallow. I keep meaning to look for a powder version of magnesium citrate I can put into water...
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    PLEASE HELP MAJOR ANXIETY DO I HAVE CFS?

    Low nutrients can cause anxiety. Get some of the basic minerals and vitamins tested. If they are low then you could supplement to get them up to middle of the reference range. Doctors are usually happy if results are anywhere in the range including right at the bottom, but middle of the range...
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    Ovarian cyst - It feels like it's going to rupture soon

    You might find this interesting : https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3184057/? Ignored adult primary hypothyroidism presenting chiefly with persistent ovarian cysts: a need for increased awareness Abstract Background Ovarian cysts are a common cause for gynecological surgery...
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    Niacin Expert needed please!

    Something else for you to consider... Having an underactive thyroid raises cholesterol. In fact, a few decades ago, before the awful modern blood tests were invented people were diagnosed with hypothyroidism based on their cholesterol level and symptoms. Many, many people would prefer it if...
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    STUDY: Did you have your wisdom teeth removed?

    I had all 4 removed at the same time while under GA. Two of them were completely under the gum and invisible, the other two were just barely showing through the gum. My health was never good from childhood onwards, but getting my wisdom teeth removed didn't make anything worse, as far as I recall.
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    ME on BBC news this morning

    For those with access to BBC iPlayer the program can be found here : https://www.bbc.co.uk/iplayer/episode/b09b4gbd/breakfast-28102017 It will only be available until 9am tomorrow (29th October 2017) so don't delay watching.
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    Vitamin B2 (Riboflavin) Effects?

    http://forums.phoenixrising.me/index.php?threads/b2-i-love-you.15209/
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    Addisons and thyroid Issues

    https://healthunlocked.com/thyroiduk The above forum is run by a charity called Thyroid UK. If you contact the charity or write a post on the forum asking for the email address, they keep lists of doctors - GPs and consultants, private and NHS - who have been recommended by someone at some...