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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. R

    Flu while having CFS

    I have had CFS for over ten years and I recently got the flu and I’m on day 10 and it feels like it’s getting worse than better. Is this normal for people with CFS because I haven’t experienced this over the years of having this illness. Thanks is for your time.
  2. R

    isocort supplement.

    Did that work better for you than this? Or should I just call him? should I just try those two supplements you listed, provided a link with?
  3. R

    isocort supplement.

    It is just crazy to me how taking a supplement has made me so terrible when I was feeling decent. I was taking lyricia and Vyvanse and I was doing much better. The vyvanse would help me for 3-4 hours and the lyrcia would hold my anxiety and soon as I added escort it made my body CRAZY and now...
  4. R

    isocort supplement.

    I'm still extremlysick guys is there anything I can do?
  5. R

    isocort supplement.

    I used isocort the last three days and on the 4th day I have crashed and burned. Anyone else notice this when taking this product? I get this metallic taste in my mouth. It feels extremely terrible. I was at about a 7/10 now I'm at 1/10.
  6. R

    When I drink alcohol sometimes I wake up with Horrible anxiety and a lot of mucous

    When I drink alcohol sometimes I wake up with Horrible anxiety and a lot of mucous in my mouth and clogged nose? What is this? Is this normal?:Retro confused: This last for sometimes mouths..... horrible
  7. R

    CFS and pain killers

    At this point to be honest i really dont care. I will be careful and if anything too dramatic happens i will s top but this point i have felt soo much better taking them for attleast 3 hours a night. I think thats worth the world right now to me.
  8. R

    CFS and pain killers

    Thanks, At this time i really dont know of another way. I hate feeling so sick all the time and this seems to be the only thing that works a little. I never go over 3 a day and i know the danger of increasing doses. If it stops working at three then i stop
  9. R

    CFS and pain killers

    I dont know, I work every day and its very hard for me and then to come home to feeling miserable. Where does it end? when, and how can i take the edge off? Its getting harder and harder to keep this cycle going with out looking for an alternative such as an opiate or some kind of substance. I...
  10. R

    CFS and pain killers

    I have been Dx with CFS, still not sure if this is the correct dx, and have been taking Norco 325/10 x 4 a day because i told the doctor it helped with my mood. Having CFS is miserable and getting high from the drug helps me zone out a little and be happy for a short period of time a day. Should...
  11. R

    Is losing hair common?

    my tsh was 1.4. pretty low but still in range.
  12. R

    Is losing hair common?

    Well my doctors appointment was shit. He kept trying to ask questions like have you had anything dramatic happen at that time it started. Questions leading me to try to answer questions to make me feel its stress related. Fucking soo annoying. If my hair is falling out and i have new rings of...
  13. R

    Is losing hair common?

    Where do I find this good doctor list? I live in Sacrmaneto Ca and looking for a good Doc. I have a ppo, blue shield to be exact. Thank you for the warm invite its been extremly hard of lately to manage to get up and ready for work. The Day i stop working will be the day I shoot myself. I will...
  14. R

    PEM/ What is it?

    To be honest i dont feel like i can work i just make myseelf because its either that or starve
  15. R

    PEM/ What is it?

    I'm wondering because I'm pretty sure i have CFS. RLC has been nice enough to answer a lot of questions for me. Although, I was wondering if this is considered PEM. I work as a nurse and all day long I am moving very fast on my feet. Everyday when i wake up I'm extremely tired with a sore...
  16. R

    Is losing hair common?

    Ok I work as a new nurse and Im constantly moving fast, walking very fast. I wake up with a very sore throat and more tired and stuffy nose. This has to be CFS. I'm not too familar with what PEM is but I think this describes it to a T? Correct?
  17. R

    Is losing hair common?

    :Retro frown: Thanks a lot. I'm going to see a doctor next week. Every morning has been really hard. I'm a nurse and working the floor every morning has been miserable. skin under my eyes burn so bad I wonder what that means, even when I get a lot of sleep.
  18. R

    Is losing hair common?

    Every morning I wake up feeling very un well. My throat is killing me and I feel just well, sick . I feel like I feel when I Sick without the flu . My mom Has CFS so this is looking very real to me . It all started in august 2010 and I feel very suicidal . I am going to make an appointment...
  19. R

    Is losing hair common?

    I've had a TSH and a CBC done and they came back within normal range. Yes im still get the clogged runny nose and I tried taken Benedryl to stop it. Any suggestions to ask my doctor about?
  20. R

    Is losing hair common?

    feel constantly tired. The skin under my eyes burn. Really dark circles under eye. Hair falling out. Fatigue from concentrating or thinking. Constantly just feeling like I have the flu.. Eye bugers. = / . When I walk the next day I wake up earlier than usual and more tired.
  21. R

    Is losing hair common?

    :Retro frown::Retro frown::Retro frown::Retro frown: So sad i been sick for 5 months and theres no signs of letting up. I cry every morning. I'm 27 and I got a flue and a week later I have felt like this and it hasnt let up. Dark circles under the eyes always tired and hair falling out.
  22. R

    Is losing hair common?

    Maybe incorrectly asked. Is this normal for CFS? I thought that was obvious ..........
  23. R

    Is losing hair common?

    I'm begining to lose a lot of hair and no one in my family has lost hair before. Is this normal? I feel the more I concentrate or try to concentrate such as reading I get more tired.
  24. R

    Where Can I get XMRV diagnostic test done?

    Thanks. I think I may do this soon.
  25. R

    Where Can I get XMRV diagnostic test done?

    Does anyone know how much this cost?
  26. R

    Where Can I get XMRV diagnostic test done?

    I have blue Shield medical insurance and live in Northern California, Sacramento. I was wondering where one could pay for or maybe even get his Health insurance to pay for something like this. Money is not an issue. Thanks.
  27. R

    Is this CFS

    Is a runny nose and black under your eyes common symptoms that last threes months?
  28. R

    Is this CFS

    First i have no idea If i have CFS. About 3 months ago I got sick after eating something, my throat got swollen and i felt sick. After that I have felt sick for about 3 months now. My main symptoms are constant malaise, Runny nose, black under my eyes and burning under my eyes and a general...