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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. serendipitycat

    The ME community can harm patients

    She twists and turns everything that is being said, never answers critical questions. Makes a big point that @Jonathan Edwards is RETIRED. Does she really think that people will accept her retired = irrelevant argument? She seems so angry with the ME-patients! Like we are the most stupid...
  2. serendipitycat

    The ME community can harm patients

    Thank you so much, Professord Edwards! I will make sure to spread your brilliant reply far and wide. :)
  3. serendipitycat

    MEandYou and All of Us: 90 Days of Stunning Achievement and a Look to the Future

    I think you are right, Norwegians have a very strong community spirit. But also, this is very novel to us as a country. Except for the cancer cause, I can't remember any campaigns collecting money for research for a specific illness. We pay high taxes, and expect that the state will spend our...
  4. serendipitycat

    MEandYou and All of Us: 90 Days of Stunning Achievement and a Look to the Future

    We are all very, very grateful for Maria's dedication to this cause. If someone could pull this off, it was she. In terms of money, the results is fantastic. In terms of positive and constructive press coverage, even more so. Maria has gathered the support of politicians, academics, health...
  5. serendipitycat

    Kenneth Friedman tells about Rituximab Think Tank meeting

    Any news from this think tank meeting yet? Trying to catch up on stuff, but can't find anything on this.
  6. serendipitycat

    Jason: Contrasting Case Definitions for CFS, ME/CFS and ME

    Would be very interested in reading this article. :-)
  7. serendipitycat

    Rituximab, a Possible XMRV Treatment?

    When? I'm just curious - how long do you think it will take before we see this published online or in a journal? Sometimes it takes months of peer-review, so... I want to see it now!! :-D
  8. serendipitycat

    Reports from the "Invest in ME" conference--May 20th

    Message also found here CFS Patient Advocate: http://cfspatientadvocate.blogspot.com/2011/05/investinme-message-from-annette.html A message from Annette Whittemore: Hello Everyone, The Invest in ME Conference just ended a few hours ago. This conference brought new and exciting ressearch...