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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. C

    symptoms wen hardly done out

    Thank u
  2. C

    symptoms wen hardly done out

    I have an gtn refferd finnally to julia newton at Newcastle for pots
  3. C

    rumatoligest sayn hurtful things

    Thank u for yr replys everyone Yes am very nervous about tmoz as also got esa assessment at centre on 23 rd just worryd thy dont belive me then seeing word phycologist and he wrote she wont like conquestes of it witch dont understand at all jist felt like he was sayn all in head u no thank again...
  4. C

    rumatoligest sayn hurtful things

    Well got my pip assessment at home tmoz so went got letters of doctor of cardiologist rumcoligist so had some evidence of symptoms. Was reading though the letter of the rumtolgist he sayn got muskulsecklul symptoms of pain etc at end letter said i need see a phycologist as am very low etc ( am...
  5. C

    missing out

    Thank u for yrh kind reply i try to focus on good things at moment ot just lil harder to be postive at moment i will try i hope u to have good day tomorrow
  6. C

    missing out

    Thank u for yr kind thoughtfull post I do feel like i grieving for life i had i only 25 yet feel so old feel like letting my kids down am sorry moaning iam not ussally like this just havn bad week tomorrow another day hopfully good one for us all
  7. C

    missing out

    Do u all feel usless like look in on family yet not able to do things they doing Like tday i tryd go out go food shopping only lil store i gt harly down first lane i had go car Feel like i cant go nowhere Doing anythg anymore i feel lot better i think if i didnt have pots on top me/ cfs...
  8. C

    Childhood illness & ME/CFS ?

    I had scarlet fever as child age 6/7. Also had chicken pox 3 times tonsils probloms glandular fever. also from age 4 sposbly eperlisy partial seizes. I am 25 i always been sickly child as mam says i wonder if these illness has caused it. I had my two beautiful children (young i no) my lil...
  9. C

    symptoms wen hardly done out

    :confused:Thank u for your reply. Yes i am under the " famously unhelpful" me clinc in uk was referring me to julia newton clinc in Newcastle? Then she turned around said i dont think worth stress as it still same medicine for pots as u on now ( bisprol fumate beta blockers)and waiting list is...
  10. C

    symptoms wen hardly done out

    Well i just put few toys in draw and am shaking feel nausea got tremors dizzy heart going fast. also everytime this happens i need erm go to empty my bowel is this normal? I have cfs\ me also possible pots my heart rate jumps 30 also wen not standing have low blood pressure Any ideas...
  11. C

    How do you deal with mess/clutter?

    I have ocd and me/ cfs pots it is nightmare i need everything clean it just make me ill it has gt lil better though over last few months i had control it as ended me in hostpital few times
  12. C

    Having somebody wash your hair

    I am same i got quite long hair dont want cut it it is such chore tho
  13. C

    Victoria piggott anyone seen her in england

    Hello i have just been see Victoria piggott at me clinc in england She said she is 99.9 percent sure of me having had me from childhood that my pregnancy 2 yr bit ago probley has led to my recent downward spriale just wounding were we go from here i also suspect pots am 25 feel 100 jist want my...
  14. C

    can i take paracetamol with bisoprolol fumarate 1.25mg beta blocker?

    Hi just quick question can i take paracetamol with bisoprolol fumarate beta blocker 1.25mg quick reply wpuld be very grateful
  15. C

    numb tingling tight feeling around ribs cheast

    I would try go back to who ever sorts your medical care sorted get another opinion incase comes back.i have a few appointments in july I going to go back gp and menton again think
  16. C

    numb tingling tight feeling around ribs cheast

    For while now i have numb tingling tight feeling around my cheat ribs to back all way round really not nice quite scary anyone else also gt tingling in head bk of it and face
  17. C

    rejected....

    All new to me only ever seen gp for my symptoms i wount no were start
  18. C

    rejected....

    :) thank u
  19. C

    rejected....

    Thank u for yr reply i " new" to all this just hope no nasty test i am well bit wimp :-D feeln way i do mk it ten times worse
  20. C

    rejected....

    Well i got call this afternoon of doctors surgery sayn the physician has rejected me i am to be sent to see a rumotoligest in may i waited ages to get that appointment to be sent to difffo one seems so far away now :'( when u feel so ill sorry for rant
  21. C

    paracetamol givn me headache?

    My blood test are all negative so spos that good thing
  22. C

    paracetamol givn me headache?

    Scary. .that show up in bloodtest though i guess yerh?
  23. C

    paracetamol givn me headache?

    Over last few weeks u noticed paracetamol is givn me headache i dont take alot med i only take paracetamol occasionally a ibruphon i mainley use heat baths extra or am to tierd to try anythg else
  24. C

    everything hurts:'(

    Thank u i still waiting on my refferal to hostpital andmy refferal to me clinc so dont really no much just i feel dreadful
  25. C

    everything hurts:'(

    Just as i starting feel " better" if u can call it that :-/ i get worse it gets harder to move my arms legs everything like lead tingly even in my face i feellike i dragging lumps lead around is this pem ? Is this "normal " i sure dont feel it when i stand up i go,dizzy my pulse...
  26. C

    Tingling inside head

    I to get it got it right now all over head to toe it scary :eek: it driving me crazy
  27. C

    Am I entitled to ESA?

    Hi i recentlly been dignosed with suspected cfs\me i am in real bad place rite now not well at all am i intittled to esa longterm
  28. C

    Severe weakness in arms and legs

    I have thyroid test all bk ok I fought for nearly two years to just get refferd to hostpital so hopfully get somewere :-S
  29. C

    Severe weakness in arms and legs

    Thank you for your kinds words and advice i will keep u updated
  30. C

    Severe weakness in arms and legs

    Thank u for your reply I am in uk i have been doctors this morning my blood pressure is 110 she said and my pulse is faster when i stand walk move etc i have been suffering this for for while now i gave Birth via caseran section in 2012 exept fast pulse it all started just bfre that mildly...