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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Ryan88

    Meat/Protein Issues

    Mostly stomach ache, digestion issues, headaches, flush, and almost constant congestion/mucous build up. I wouldn't consider those my main symptoms though, since most of them aren't daily but rather responses to eating the wrong foods etc. That's why I was skeptical. But like I said I've never...
  2. Ryan88

    Meat/Protein Issues

    @Tigger Glad you're finding some success with digestion, at least the initial part of it. I also feel much better on days when I don't eat much. I've done a low histamine diet in the past while working with my Naturopath, but it wasn't for very long. She was convinced that I have MCAD. I never...
  3. Ryan88

    Meat/Protein Issues

    Hi Tigger, do all protein-rich foods give you the same reactions/sensations? Also do you have a "crash" afterwards (brain fog, stiff muscles, lethargic, etc)? I have a similar reaction when I eat meat, esp chicken/turkey etc with higher protein content as well as all protein powders, quinoa and...
  4. Ryan88

    Is anyone else hypersensitive to stimulating herbs/meds/foods?

    I am totally hypersensitive to a LOT of foods! Caffeine messes with my head big time. I can't eat or drink anything with added sugars either (of any kind, even honey, molasses, xylitol, etc) since I have similar effects to those of caffeine. Certain herbs, spices, + proteins also affect me...
  5. Ryan88

    Looking Ahead to Change: Little by Little

    Great post, couldn't have put it better myself. It's very affirming to hear your story and way of learning to roll with the punches. I too always relied on my self-discipline and willpower to get things done, and once my chronic illness set in, relying so heavily on those led to nothing but...
  6. Ryan88

    hypersensitivity and Absorption problems

    @roller That's an interesting discovery and I'm glad it's helped you. I don't know that it applies to me, as I've had reactions to ingesting in just about every shape and form - from powder, liquid, capsule, gels, pills, solid foods, liquid foods and so on. Even certain shampoos and skin...
  7. Ryan88

    hypersensitivity and Absorption problems

    @justy when I was working with a Naturopath her suspicions were some form of M.C.A.D. I wasn't aware there were specialists in the field. I'll have to check into that.
  8. Ryan88

    hypersensitivity and Absorption problems

    I've been having *extreme reactions* to so many things it's almost comical. Except not. Here's the one's I can think of right now: -Anything with caffiene, taurine, guarana, or other natural or synthetic "energy enhancers" -Any foods with added protein/amino acids (e.g. whey powder, tofu with...
  9. Ryan88

    Drs/ studies in or around Seattle area?

    Thanks @minkeygirl, @ahimsa, @CFS_for_19_years, @out2lunch & @Strawberry that gives me a lot to go off of!
  10. Ryan88

    Drs/ studies in or around Seattle area?

    Hello, I was wondering if any one knows of or can recommend any Specialists in Washington state (or if not then closest to that area). I'd also be interested in being a part of a CFS/ME-related study or research trial, but I don't know where to go about finding such a thing, or if one exists...
  11. Ryan88

    Riding in car causes draining fatigue.

    I have this problem too, but for me it has to do with elevation changes (I live on the Big Island where the road varies from beach to mountain - as much as thirteen thousand feet). Also overstimulation is problematic, especially too much noise. Interesting that flying doesn't have the same...
  12. Ryan88

    Does your body get really cold when you're in a crash?

    I experience the same thing. I live in Hawaii, where it's normally pretty warm, but I get really chilled, especially before/during a crash. Doesn't help that I have almost no bodyfat. I think there must be a connection to my other symptoms. I like the 'body is warning us' theory.
  13. Ryan88

    Comment by 'Ryan88' in 'CFS and dietary B vitamins'

    Hi, thanks for the post. What foods do you have in the afternoon/evening that are low in the B vitamins that you mentioned?
    • Ryan88
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