• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Is it worth explaining the difference between ME and CFS to the public??

    Has anyone received better or different treatment by the general public or the medical profession by calling their CFS diagnosis ME? Did your condition improve when you called it ME? Would you have less pain/symptoms if you called it CFS? I have noticed no difference at all when I call it...