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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. babiediva2002

    Dysautonomia, Pyroluria, maybe both ? 23andme results

    I admittedly dont know the particulars involved. I am type 3 EDS, which involves no genetic testing in that sense (is similar to the type of diagnostic criteria described in the site below.). But this site was updated recently and quotes a 70 - 93 percent rate of accuracy. I only know of Marfans...
  2. babiediva2002

    Dysautonomia, Pyroluria, maybe both ? 23andme results

    Glad to hear you are feeling better. :) Also glad to hear you have ruled out EDS; I hope you were able to do the same with Marfan's, which doesn't necessarily involve hypermobility. :) Best of luck.
  3. babiediva2002

    Dysautonomia, Pyroluria, maybe both ? 23andme results

    Awww, man. Some of the stuff your are saying. :( I hope I dont get an affirmative answer, but are you by chance hypermobile? That is, *double-jointed*, as most people tend to say? Maybe in fingers and/or elbows and knees? Forgive me for being so forward about it, its just that mitral valve...