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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. C

    Could this be a parasite? (warning: long post)

    Hi Art, Went a different route and saw KDM in belgium in April, back there on the 4th of July for my follow up. So far results have shown up Borrelia, Yersinia & Chlamydia Pneumonia, dysbiotic gut bacteria, elevated zonulin & Siga. Completely forgot to mention the parasites during my consult...
  2. C

    First KDM Appointment On Wednesday

    So I got my results from ArminLabs see below. Does this mean I have Lymes disease any comments appreciated. thanks colm. Borrelia Elispot Borrelia B. Full Antigen 0-1 = Neg 2-3 = Weak Positive >3 = Positive Result 2 Borrelia b. OPS-Mix 0-1 = Neg 2-3 = Weak Positive >3 = Positive Result 2...
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    First KDM Appointment On Wednesday

    thanks have just emailed arminlabs so hopefully they get back to me shortly.
  4. C

    First KDM Appointment On Wednesday

    So my first results are in from Red Labs on stool tests, bloods will be ready end of next week and msa stool analysis in another 3 weeks. Details below, someone better educated to explain these might comment but from what I can see I have major leaky gut. Now how do I go about reducing it? I'm...
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    First KDM Appointment On Wednesday

    Thanks JadeD will wait another week and give them an email. Redlabs seem on the ball got my invoice from them within a day or returning to Ireland, only got my invoice from Armin labs yesterday which seems a bit of a wait. Will let you guys know if I get the results. thanks colm.
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    First KDM Appointment On Wednesday

    So I'm still awaiting the results from my tests with KDM (back with him on the 4th of July) but thought I would share an update with anyone who is interested. I attended an infectious disease specialist here is Ireland last year who put me on Rifampcin and Azithromycin he didn't find anything...
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    First KDM Appointment On Wednesday

    Necessity is the mother of invention :D will have to remember that one valentijn :thumbsup:
  8. C

    First KDM Appointment On Wednesday

    Thanks Jade hopefully it's the beginning of some answers for us. I suppose whatever happens we are the fortunate ones in that we have the opportunity to try this route when many in the same boat as ourselves can't. Strangely enough the day I was heading to Brussels I had an interesting call...
  9. C

    First KDM Appointment On Wednesday

    So here's my update after my 3 days in Brussels with KDM. Tuesday 11th of April Flew from Dublin to Brussels, booked a late flight as I'm not the best in the morning. Flight time is only 1hr 20mins so was fine. Arrived in Brussesls at about 9pm and got a taxi to the Eurovolley centre in...
  10. C

    Dr. John Lambert

    Hi abha, I attended Dr Lambert last year. He is purely and infectious disease doc so I think he comes at me/cfs as an undiagnosed infection with Lyme's etc.he uses labs in Europe but I'm not sure how accurate the tests are. He didn't find anything with myself and he apologized as he had hoped...
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    First KDM Appointment On Wednesday

    Thanks for your reply JadeD I'm actually looking forward to the 4 hours peace reading my kindle, seldom get four hours to myself with 3 kids and a business :). Just hoping I get some answers and treatment options from this process.
  12. C

    First KDM Appointment On Wednesday

    After two months wait my first appointment with KDM is this Wednesday. Flying out from Dublin tomorrow evening, trying not to get my hopes up after so many let downs from Doctors in Ireland but hard to rein in hope I suppose thats a good thing and keeps me going. Will post an update for anyone...
  13. C

    Over Activation of Farnesoid X Receptor In the Ilium Driving Liver and Gut Disharmony

    Started Tudca 4 weeks ago, personally this has been one of the best supps I have ever taken. I was already taking ox bile and hcl which helped with reflux but this has been amazing for my bowel problems. Liver pain is gone I would get this in a flair up and have it on and off, stools normal...
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    Over Activation of Farnesoid X Receptor In the Ilium Driving Liver and Gut Disharmony

    This is really interesting I was diagnosed with Gilbert's at 17 after a bad case of mono. I have always had liver discomfort and yellows eyes but never elevated bilirubin in the blood also had my gallbladder out 7 years ago. After being put on artemisinin by my naturopath I felt great for 3...
  15. C

    Appointment with KDM & prescriptions

    Glad to Know Marc I got the price list which I'm sure is an under estimate but happy to hear you don't have to run the same battery of tests every time.
  16. C

    Appointment with KDM & prescriptions

    thanks :thumbsup:
  17. C

    Appointment with KDM & prescriptions

    Thanks Gregh can I ask what SBO means? I started on colostrum but will add in lactoferrin as well. KDM might have to take an IOU with all the supplements etc I'm buying. :)
  18. C

    Appointment with KDM & prescriptions

    Pretty sure its infectious picked up a tummy bug off the kids and all hell broke loose in the space of a year, the clincher was a knee op that I woke up from feeling like crap in the space of 4 weeks pretty much collapsed. Felt great on arteminisin for 3 weeks was unbelievable didn't think I...
  19. C

    Appointment with KDM & prescriptions

    Thanks Greg way to put a downer on my day :p. I've actually read some of your posts and am familiar with your story (hope your doing ok). If he does diagnose me as having lymes at least I'll have a diagnosis after 4 years and tens of thousands of euro later :D. I try not to get my hopes up...
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    Appointment with KDM & prescriptions

    Thank you so much for the reply spiderbaby a bit more reassuring to know someone from here is going through the process. I have spoke to my Gp and he has committed to help but I will reiterate it could be long term abx. Can I ask how you have you seen any improvement since you went to see KDM...
  21. C

    Could this be a parasite? (warning: long post)

    I know this is an older thread but very interesting, I have recently been diagnosed with Dientamoeba fragilis and Entoamoeba harmanni. When my symptoms started 4 years ago it was very similar to the OP. A tummy bug did the rounds of my house I caught it and had chronic diarrhea, pain in my...
  22. C

    Appointment with KDM & prescriptions

    Not sure if I was tested for all of them, definitely CMV & EBV, I had a bad case of EBV when I was 16 layed out for about 8 months with it. But again not sure on the tests they used as this is Ireland and in terms of upto date medical testing in this field it is a backwater. That's why I've...
  23. C

    Appointment with KDM & prescriptions

    Not sure but I can get my GP to rewrite the prescription so they would be available :)
  24. C

    Appointment with KDM & prescriptions

    Thanks Justy yeah would be great if I could get most of them in Ireland as we have a scheme were you only pay maximum €140 per month for your prescription meds the rest is government funded. I know prescriptions etc is very far away given I haven't even had my appointment yet but was just...
  25. C

    Appointment with KDM & prescriptions

    Hi Knockknock, I posted in the introduce yourself forum so didn't want to start posting the same here. I was given a diagnosis of post viral chronic fatigue over here in Ireland but I would say that diagnosis is worthless more based on ruling out everything else. I had my galbladder removed 5...
  26. C

    Appointment with KDM & prescriptions

    Hi, just posted in the introduce yourself forum, after 4 years of terrible health and getting nowhere with the Iris medical establishment I have booked an appointment to see KDM, due there on the 12/13th of April. I've read through all the posts here of peoples experiences and the progress some...