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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Article: What's Next for XMRV?

    Well for me multiple factors were involved - very high stress, combined with vaccines before an overseas trip then the final blow which seemed to tip me over in to CFS was a virus (gastro type). what I don't understand is that natural killer cell dysfunction seems to have been commonly...
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    Article: What's Next for XMRV?

    When is the study being released?
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    Article: What's Next for XMRV?

    Good points. Yes natural killer cell dysfunction seems a very common marker, but thats been identifed for 20 years and no one has made head or tale of it. I would be interested in knowing what the study you are involved in as adding to this body of research - the key question being WHY the...
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    Article: What's Next for XMRV?

    XRMV skeptic Sorry to say but I've always been a bit of a skeptic about XRMV and CFS, and am not surprised by these negative results. Of course its disappointing as we all want this disease better defined, whatever the cause I guess I'm generally skeptical about the immune theory of CFS -...
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    Who Here Takes Any Kind of Mushroom?

    I tried shiitake many years ago. I felt worse and thought my allergies got worse. I thought maybe it was activating an already over activated immune system. There is a Japanese drug (SPG) based on the suehirotake mushroom that was studied in the early to mid 90s by a Japanese professor at Kyoto...
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    Article: What's Next for XMRV?

    Swedish study My understanding was that a Swedish Study was being done, supported by one of the UK groups. I thought it was due out in the summer