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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    "Unrest" updates

    Hi Old Bones. Jen won't be attending in person, but we're hoping to finalize her attendance via Skype for the Q&A that follows the screening on Saturday May 13th. Just waiting for final confirmation on this. The ME|FM Society of BC is sponsoring this event. We will be speaking/presenting at...
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    Exercise. Yes, that dreaded topic!

    Hi Strawberry, When I started doing strength training I had a similar experience: I started at a level I saw recommended for other chronically ill patients and seniors of two sets of 8 reps using small weights (under 5 lbs). That knocked me out for a week. The next week I tried the same...
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    Canada: Chronic disease expert at pioneer BC women's clinic leaves abruptly

    Kati, it sounds like you had a really bad experience and I'm sorry for that. I don't underestimate how hard that must have been on you...and it also sounds like someone majorly screwed up by missing some things. It's just that I also know people who have had very positive experiences at the...
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    Canada: Chronic disease expert at pioneer BC women's clinic leaves abruptly

    I also think the value of the service that was offered by the clinic has been skewed here. Kati, maybe you were able to get a diagnosis or self-diagnose and self-educate so what the clinic had to offer was nothing new to you and therefore disappointing, but many patients are not in the same...
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    Canada: Chronic disease expert at pioneer BC women's clinic leaves abruptly

    Kati, I think the way you're framing the clinic offerings is misleading. Yes, Dr. Bested created support groups to help people learn self-management and, it's true, one of the tools she offered people was CBT, but NOT Wesley style CBT that presumes patients have a false belief that they are...