• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. B

    Is ME due to Ehlers-Danlos Syndrome "stretchy veins"

    Thanks for posting all this information, Allyson and others. I have POTS and several doctors have commented on my hypermobility and skin over the years. I also have a lot of the other symptoms of EDS. I live in Melbourne so I'm going to ask my GP for a referral to the Genetics Department at...
  2. B

    ME awareness week UK news articles .

    A long article in the Guardian. The trouble with ME: http://www.guardian.co.uk/society/2010/may/13/me-chronic-fatigue-syndrome and Living with chronic fatigue syndrome by Emily Levick http://www.guardian.co.uk/society/2010/may/13/chronic-fatigue-syndrome-me
  3. B

    Any contact with Asia before the onset of ME/CFS?

    I was in Japan on a school trip just before becoming severely ill. I was mildly unwell while there and became very ill within a few weeks of returning home. My doctor at the time said I had a 'major, unidentifiable virus'.
  4. B

    Australian Red Cross: UNOFFICIAL ME/CFS donation ban

    I'm in Australia and phoned the Red Cross 8 or 9 years ago, during a period when they were very low on blood, to ask if I could donate and was told that ME/CFS patients could not. I wonder if they are actively asking donors if they have ME or if they are relying on individuals to take...