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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

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    Detection of Mycotoxins in Patients with CFS

    I was on the protocol for 6-8 months at least (with Dr. Brewer directly). Nystatin and Ampho-B; used ampho the longest. However the protocol was triggering my ocular migraines like mad so I stopped last summer. Before all of this our house had mold in it; I had house cleaned up as best as...
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    Detection of Mycotoxins in Patients with CFS

    Yes, ERMI testing is good. And so is the real time labs testing. I think the real time labs dust is probably a better test to check for current environmental mycotoxin exposure. Even if you have say pennicilium spores found using ERMI (very common, they are everywhere) there is no guarantee...
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    Detection of Mycotoxins in Patients with CFS

    ALL homes have mold spores in them. Mold spores are literally everywhere at all times; it's nearly impossible to avoid them unless you are in a "clean room" they use to make electronics or do research. Something like 250,000 spores fit on the head of a pin... Every mold culture test should...
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    Detection of Mycotoxins in Patients with CFS

    lfish; do you still live in your home/place of exposure?
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    Detection of Mycotoxins in Patients with CFS

    I have been just rinsing it off. I had a bit of a crash this week. But I have been off treatment for over a week. Tonight I will start the Nystatin. I was on Ampho for almost 8 weeks.
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    Detection of Mycotoxins in Patients with CFS

    So far I have to say the treatment appears to be having a positive effect. I switched from Ampho B to Nystatin to see if it helps with my visual migranes possibly being triggered by the Ampho B/detoxing. I took a week or two off from it and I feel remarkably better; best I have in awhile. I...
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    Detection of Mycotoxins in Patients with CFS

    No he didn't. I didn't discuss it with him. Early March.
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    Detection of Mycotoxins in Patients with CFS

    I've been having similar reactions to the protocol. Although I find some of my detox symptoms to be a little different we match up on most of them. There was one point I had to stop the meds; once I did I found I rebounded fairly quickly. At one point I was feeling noticeably better so I...
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    Detection of Mycotoxins in Patients with CFS

    I am under his care and using this protocol. I tested high for tricothecenes from RTL. Oddly my 1st test was negative, very low level of tricothecenes. We did a re-test after discussing all of my symptoms. For the 2nd test I had been doing some strong physical activity the day before and I...