• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. E

    Please clarify "post-exertional malaise"...

    Thanks, everyone, for the detailed explanations. Every response contributed a little extra info that's been incredibly helpful. I've been trying decide whether or not it would be worthwhile to see a specialist, and since I definitely get PEM/PENE, according to what I've learned here, I feel...
  2. E

    Please clarify "post-exertional malaise"...

    Does it mean you cannot tolerate any amount of exercise that increases heart rate/prolonged low-level activity? Or does the amount of exercise you can tolerate vary depending on severity of symptoms, etc.? And does everyone have a different threshold they can't go over before getting PEM? TIA :)
  3. E

    POLL: what triggered your CFS/ME?

    I contracted infectious mononucleosis at 29, which I've since learned is easy to recover from as a teen/young adult and not so easy once you're out of the early 20's, and either the virus won't shut off or it's done lasting damage to my brain/CNS. I've been ill since that bout with mono ages ago.