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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. K

    More info on GCMAF...

    Olena I'm thrilled for you. Unfortunately I have not had the same results. I used up 3 vials worth in the last 5 months. I am still contemplating switching to Goleic but need to wait for First Immune to be resupplied. Sighhhhh.......
  2. K

    GCMAF factory closed down in the UK

    Ok, so I also got the above email that Deborah posted. I thought great I can order more but was told they only sell the Goleic, not the injectable. So, now what do I do.??? I have 2 more doses left. It did drop my nagalase from 2.95 to 2.10 after 2 months of tx. I got "worse" for a...
  3. K

    More info on GCMAF...

    @SB_1108 Yes, I asked my pmd . first I downloaded the request form for the kits; had it filled out; office has to fax the info to NJ. They sent kits to the pmd office, and I picked it up. Then I had him sign 4 lab requisitions up front so I wouldn't have to see him each time I needed a lab...
  4. K

    More info on GCMAF...

    Yes, thank you, NJ is where I send the nagalase. I noticed D 1,25 was not reported on my last test. I will ask for it. thank you again for all your help. Hopefully gcmaf is helping, but I haven't really noticed improvement yet. I hope Immunocorp gets up and running again before I use up all...
  5. K

    More info on GCMAF...

    ME is the only condition that describes what I experience. I don't have lyme, or herpes. I don't know about other conditions that others are taking meds for. The only unusual thing I experienced is a drop in my average daily temp, but it looks to be stabilizing the last week. I will have my...
  6. K

    More info on GCMAF...

    Are injections 1x/wk or 2x/wk.? I have read both, but the company says it is 2x/wk. So I am doing 100ng/2wk. ( I don't have a md). Just wondering what most people are doing. thanks