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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. LaPerla

    The ME community can harm patients

    Liva Landmark announced today on twitter that her article lead to a lot of debate - and that she is writing "a reply" to this which will (later) be published in the same newspaper as the last time (VG). I'm really glad that you @Jonathan Edwards replied to her first article! This LP-Coach and...
  2. LaPerla

    New pilot study in the loop from the researchers at Haukeland

    I'm not sure if this was an error, the information IS in the "public records" section, indeed. Personally I'm just a bit worried that too much media coverage and speculations will not benefit us :)
  3. LaPerla

    New pilot study in the loop from the researchers at Haukeland

    Hello everyone :) I understand that this is kind of big news - but in the correspondence records (Regional Commitees for Medical and Health Research ethics in Norway) Drs Fluge and Mella have asked for exemption from public access for this study (november 2014). I guess this is because they need...
  4. LaPerla

    Rituximab study in norway. An application to The Research Council of Norway

    My finger's crossed for you :)
  5. LaPerla

    Rituximab study in norway. An application to The Research Council of Norway

    deleder2k: Can I ask, which hospital? Are they still recruiting for the mulitcenter-study?
  6. LaPerla

    Project description of ME/CFS treatment with TNF-alpha inhibitor Etanercept (Enbrel®)

    According to this site (The Norwegian ME-Association), it looks like the Enbrel-study has been stopped. http://me-foreningen.com/meforeningen/innhold/div/2014/01/Forskningsrådet-Sykdommer-vi-ikke-forstår-CFS-ME-og-klinisk-forskning-26-november-2013.pdf (page 9, link in norwegian). On a...
  7. LaPerla

    My Rituximab experience with RA and ME

    A. Koegelnik, California. I think it is some info in the forum if you use the "search" function.
  8. LaPerla

    My Rituximab experience with RA and ME

    I don't think so. I have only heard of Koegelnik.
  9. LaPerla

    My Rituximab experience with RA and ME

    No, it's not possible to get infusions in Norway, not as far as I know.
  10. LaPerla

    Norwegian Rituximab study starting 2014

    http://mariasmetode.no/2014/03/rituximabstudies-an-update/ Scroll down for english translation.
  11. LaPerla

    'Sometimes it feels as if the world goes on without me': adolescents' experiences of living with CFS

    Good study! As a mother I find this article very touching and it gives a good and realistic insight in adolescents experiences. Read the full text article :)
  12. LaPerla

    Disease Mechanisms and Clonidine Treatment in Adolescent Chronic Fatigue Syndrome

    Thanks! I'm sorry, I did not notice the first discussion about the paper :)
  13. LaPerla

    Disease Mechanisms and Clonidine Treatment in Adolescent Chronic Fatigue Syndrome

    Norwegian study does not support "sustained arousal hypothesis"? CONCLUSIONS ABSTRACT | METHODS | RESULTS | DISCUSSION | CONCLUSIONS | ARTICLE INFORMATION | REFERENCES Adolescent CFS is associated with enhanced sympathetic nervous activity, attenuated hypothalamus-pituitary-adrenal...