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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Low IgG and IVIG Troubles.

    Misfit, she uses Gammagard, both for the IV and the sub Q. She gets bad headaches (sometimes migraines), severe exhaustion, itchiness, dizziness. I am part of dailystrength, also, but haven't seen posts from others with the bad side effects from IVIG but maybe because I am only looking under...
  2. B

    Low IgG and IVIG Troubles.

    HI, Misfit. My daughter gets IVIG for CVID and she has had all the problems you describe above. I am so frustrated with her doctor because she insists it is not from the IVIG and implies that it is due to "her other issues". My daughter switched recently to sub Q weekly because she always...