• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. B

    This is the Genetic Messed Up Me - Any Advice I'm a newbie

    Hi, have you had a diagnosis from the doc?
  2. B

    Has anyone been completely cured of CFS?

    try post #164 above and open the link
  3. B

    Has anyone been completely cured of CFS?

    probably all of the ones you have in mind!
  4. B

    Has anyone been completely cured of CFS?

    Please read again what I said. Immunity is lowered - this applies to the population as a whole. People become vulnerable to opportunistic bacteria, viruses etc, when that happens
  5. B

    Looking for new place to live

    I hope you find your own place where you can feel totally at ease!
  6. B

    Has anyone been completely cured of CFS?

    sorry but you are wrong. It has been proven to be the case scientifically. If you don't believe it, I can't help you! The issue seems to be that you are confused or don't understand what constitutes stress - that's a different matter
  7. B

    What's wrong with my esophagus?

    you could check with the doctor about intolerance to certain foods stress factors and anxiety can also irritate the alimentary canal
  8. B

    What's wrong with my esophagus?

    It could be that you have IBS (with fatigue) - this is a condition that affects anywhere along the alimentary canal
  9. B

    Has anyone been completely cured of CFS?

    your doctor will say it's incurable because he/she doesn't know how to deal with the illness! I agree with the things you have listed, except the metabolism/nutrition - and you left out stress
  10. B

    Has anyone been completely cured of CFS?

    it is common knowledge that stress lowers the body's immune system
  11. B

    Alegria says: CFS is a "Neurasthenia Spectrum Disorder" (2012)!

    doctors usually refer CFS/FMS patients to psychiatrists because they are clueless -- they are required to take action, as the patient is clearly ill and VOILA, enter the psychiatrist! problem offloaded!
  12. B

    Alegria says: CFS is a "Neurasthenia Spectrum Disorder" (2012)!

    CFS is characterised by exhaustion - weakness is a separate condition, and in India there are millions of people on a poor diet
  13. B

    Appreciate any advice on my GI effects and CSA test results

    Hi, what are your main symptoms?
  14. B

    Desperate for answers; Girlfriend getting sick

    do you recall how this started 2 months ago? was it sudden or was she already having problems before those two months?
  15. B

    Prof Stephen Holgate @AfME conference "we are bathing in ignorance"

    you make some good points! I don't believe illnesses such as CFS, FMS, IBS etc will be treated by psychological therapies either, for the simple reason that those who have been taken ill (usually) have no psychological symptoms
  16. B

    Prof Stephen Holgate @AfME conference "we are bathing in ignorance"

    No. it is well established that stress weakens your immune system Stress has been present among many who have been taken ill. But feel free to ignore this if you are convinced that CFS, FMS etc have little or nothing to do with stress
  17. B

    Prof Stephen Holgate @AfME conference "we are bathing in ignorance"

    what were the other factors in your opinion? It is very strange to dismiss the role of stress as "neither necessary nor sufficient" (whatever that means)
  18. B

    Prof Stephen Holgate @AfME conference "we are bathing in ignorance"

    fair assessment!
  19. B

    Currently ill on valtrex - thinking of switching to famvir.

    I said it's a good idea to reduce exertion - read my post again. If you agree with that, then your post is redundant or maybe you have too much free time on your hands?
  20. B

    Prof Stephen Holgate @AfME conference "we are bathing in ignorance"

    I'm not sure the point of your post, I said "it can make them more vulnerable"
  21. B

    Currently ill on valtrex - thinking of switching to famvir.

    maybe you were used to regular workouts before your symptoms, probably it is a good idea to reduce physical exertion, but not completely stop the exercises
  22. B

    Prof Stephen Holgate @AfME conference "we are bathing in ignorance"

    it can make them more vulnerable
  23. B

    Prof Stephen Holgate @AfME conference "we are bathing in ignorance"

    how are you certain that stress may not have health consequences?
  24. B

    Prof Stephen Holgate @AfME conference "we are bathing in ignorance"

    toxic could mean a stressful lifestyle
  25. B

    Upper body and head feel hot and overheated and feel weak and shaky from even low level of exertion

    read my post again. I didn't say CFS/ME is caused by anxiety. I was responding to the symptoms in question. Now you want to discuss the causes of CFS/ME? Please open another thread. Thank you.
  26. B

    Upper body and head feel hot and overheated and feel weak and shaky from even low level of exertion

    Shakiness/hot flushes may just be anxiety symptoms
  27. B

    Upper body and head feel hot and overheated and feel weak and shaky from even low level of exertion

    you may not have damaged cells at all. Have you discussed this with your doc?
  28. B

    How successful are diets for cfs?

    The value in avoiding certain kinds of foods or including dietary supplements in helping with CFS/ME symptoms has been exaggerated IMHO. Diet alone is unlikely to make much difference. If diet was the reason why these symptoms existed then tens of millions of people in places like India, where...
  29. B

    Experience with Dr.Levine

    Really ? what did this specialist find? and did the specialist have any idea where this 'abnormality' had come from?
  30. B

    Experience with Dr.Levine

    usually CFS patients when they undergo medical tests don't have anything wrong with them clinically/pathologically. (They may develop medical conditions further down the line due to a restricted lifestyle). That means drugs are not the answer, although they might reduce some of the symptoms.