• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. O

    Seattle, WA: Harborview Chronic Fatigue Clinic

    Haha, I'm right there with you! If it isn't the brain fog, dealing with the rest of this stuff is enough to make one loose it. Wow, 1987, that's quite the long road. Hope the worst is behind you. Thanks again for writing back.
  2. O

    Seattle, WA: Harborview Chronic Fatigue Clinic

    Thanks for responding! From what I have been told, NDs don't take insurance and can't fill out disability/social security paperwork, so I need to see an MD, unfortunately.
  3. O

    Seattle, WA: Harborview Chronic Fatigue Clinic

    Obviously, tests do not cure CFS. However, it may be good to know if I have high viral titers or how immune stem may be functioning to possibly try an antiviral or immune modulator. The one Internal Med doc I saw (although not in WA) was awful. Did no blood work, no exam, told me to "go home and...
  4. O

    Seattle, WA: Harborview Chronic Fatigue Clinic

    Also, I have never had any testing other than basic blood work, so I think it would be a good idea to get more thorough testing and possibly try immune modulators or antivirals. Does anyone know of an MD in the Seattle area that might be able to help?
  5. O

    Seattle, WA: Harborview Chronic Fatigue Clinic

    I completely agree Kenny! I am taking tons of supplements and vitamins, and don't really want to try any more prescription meds unless a new miracle cure comes along, as most meds have given me more difficulty than helped. The problem is I was finally approved for disability last March which has...
  6. O

    Seattle, WA: Harborview Chronic Fatigue Clinic

    Hello, I am new to Phoenix Rising and really need some advice/help. I have had severe ME / CFS for 4+ years now, am housebound (mostly bed bound but able to be up in recliner for a few hours a day). Unfortunately, I was forced to move to the N. Seattle area approx. 15 months ago and really need...