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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. wanttorecover

    How many of us have neuropathic pain/damage; both peripheral and autonomic?

    What is considered small fibre neuropathy? I have a typical ulnar neuropathy in my hand which is affecting function too which is why it is so annoying, but then it is the way the signals are interpreted in the brain that is likely the cause? Do they ever improve? Think that's what threw the...
  2. wanttorecover

    How many of us have neuropathic pain/damage; both peripheral and autonomic?

    I have the low HDL - very low in fact but have low LDL also. Read your linked article my GP is adamant it is not a diabetic neuropathy have been tested a multitude of time we are still not sure the exact cause of the neuropathy as the neurologist hasn't replied after they tested the nerve...
  3. wanttorecover

    Peripheral Neuropathy

    What treatments are available? I have had a neuropathy that has been constant for over two years now and would lover for it to go away. I am going to ask my GP for Vitamin B 12 injection next time I see him as my diet is very poor maybe that will help.
  4. wanttorecover

    How many of us have neuropathic pain/damage; both peripheral and autonomic?

    I selected yes to nerve pain I get episodes of it and really hate it as well as all sorts of neuro symptoms they drive me nuts. Peripheral neuropathy can definitely be ME mine is in my right and classed as ulnar the testing showed slowed nerve impulses along that nerve so it must be impaired in...
  5. wanttorecover

    Bruised feeling along spinal cord

    I am supposed to see my naturopath back guy once a week to alleviate this but as per usual none of these things are funded under our sucky health system in NZ everything is user pays and I look after my disabled husband full time so am unable to work. Everything is a catch 22.
  6. wanttorecover

    natural or mild sleep aids?

    I don't even know if you have heard of milo or can get it where you are it is a vitamin based chocolate drink I was told this by a ME specialist I know it sounds kooky but strange to have three cups of milo with two heaped tea spoons of milo and three heaped tea spoons of sugar and a good serve...
  7. wanttorecover

    Bruised feeling along spinal cord

    I have this feeling all the time and it flares up with hot weather for me. Sometimes you can actually see the bruising along the spine. It always feels bruised and gets worse if I am over or under active GRRRRRRR I hate it. But I also have fibromyalgia so don't know which is causing it could...
  8. wanttorecover

    Which CFS Symptom Do You Hate the Most?

    Heat intolerance
  9. wanttorecover

    Has anyone gotten CFS after a physical trauma (major car accident, burn, etc) ?

    I have heard people say that major trauma is a common cause of ME. My husband has ME due his brain injury from a major car accident. I know of many people with brain injuries (mostly the more severe type as in diffuse injury) who also have ME.
  10. wanttorecover

    Do people feel better in cooler temperature?

    Just checked it out thanks for the tip.
  11. wanttorecover

    Do people feel better in cooler temperature?

    I have replied as yes I feel much better in cold weather as the rest of my symptoms become a lot more manageable or like another member stated it is probably more to do with the fact I feel so much worse in summer in the last few years I have had severe heat intolerance which causes all of my...