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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Anxiety & CFS symptoms activated by Eating/Drinking

    Thanks. My wife and I are very judicious about avoiding all HFCS in all foods we consume...we're good label readers. That said, the occasional ingestion of HFCS hasn't seemed to set off symptoms. I am not on a regular dose of a benzo. However, I have a stash of Klonopin, which I take...
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    Anxiety & CFS symptoms activated by Eating/Drinking

    I've had extended periods of anxiety and chronic fatigue symptoms for many years. Anxiety is the all-day kind, not the 1-2 hr. panic-then-subsiding. Flare-ups can last for 6-12 months or more, then disappear, leaving me anxiety free, for 1-2 years or more. Changes in lifestyle or diet never had...
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    The Best Drug for ME/CFS? The Other Side of Klonopin: A Patient's Story and A Survey

    Don't know if anyone is still monitoring or responding to this old thread. I happen to chance upon Gabby's story today at the end of 2015, when looking for Klonopin for CFS pros/cons on Google. The thing that stands out to me about her story is that, after her 8 year Klonopin buildup and...
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    Severe Night-Time Crashes

    Thanks, Wifi, for your very caring & detailed reply. Klonopin side effects are not my problem. Sorry I wasn't clearer, but I am not a regular user of this drug, I actually only take Klonopin very rarely. Across this whole year, I've taken maybe 6 tablets of lowest dose. Thanks for your...
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    Severe Night-Time Crashes

    Many thanks to all who replied. I must edit my original post, as the crashes are no longer confined to the later hours. I have now had several horrible daytime crashes within an hour or two of waking, even after 8+ hours of sleep, with debilitating symptoms that last half or all day. The...
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    Severe Night-Time Crashes

    I've never taken blood sugar levels so far, in my life. I've had doctors take them, and I've had doctors do an adrenal-cortisol cycle test, but they never reported anything notable. And I already eat pretty impeccably - all organic, mostly protein and greens, low carbs & sugars. Still, if you...
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    Severe Night-Time Crashes

    I've had CFS symptoms on & off for many years, including a 2 year period where I could barely work at all. These days I have enough daytime energy to work, play, and live fairly normal. But every night, right around 9-10PM, I get a sudden-onset crash, where without warning, all the energy...