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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. V

    Is This CFS?

    Well, if anyone can work out the riddle. It's been 3-4 days since I stopped the Mega B-Complex and I feel better while not taking that, better energy, less tired then last week and also my Blood Pressure has returned to figures around 130/84, its been at 150/100 for the past few weeks. I know...
  2. V

    Is This CFS?

    Went to see my Doc again about this, basically got elbowed away with, "we will test b12 for the 4th time" "we will talk to the blood specialist again after that" "we think your fatigue is from anxiety and your high b12 means nothing"
  3. V

    Is This CFS?

    Thanks I will check some of these links. I don't know if this will prove of any interest to anyone but I also have whats called Keratoconus, basically autoimmune condition that effects the cornea's and makes them go thin and lose shape, at present I'm waiting for an operation on my left cornea...
  4. V

    Is This CFS?

    Thanks for the suggestions I will look into them more, I did see that mast cell disorders are listed to have episodic symptoms, while my symptoms do not really seem to happen in bursts, I always have something wrong in one way or another. The more I research the Methylation Cycle the more it...
  5. V

    Is This CFS?

    I am from the UK. The Methylation problems have interested me for sometime, I did google alot after getting the blood work showing high B12, even tried talking to my DR about this but its like banging my head against a brick wall. Every condition know to cause excess B12 that my Dr and blood...
  6. V

    Is This CFS?

    I am unsure if I have that or not, I do know my muscles fatigue far easier then ever before, I used to go to the gym weight lifting 3-4 days per week, my legs were my strongest body part and I was able to squat 200kg now a simple bike ride will give me muscle fatigue in my legs for days, maybe...
  7. V

    Is This CFS?

    Hey all, just looking for some opinions with ongoing problems that stretch 2 years now from onset. I began my long list of symptoms with headaches around my sinus/eyes area which started september 2012, these were constant low grade tired like headaches that were not relieved by any...
  8. V

    High B12 + high igA levels CFS?

    Hello everyone, I have posted here a few times over the past year after reading some threads I found "googling" about having high vitamin B12 levels show in blood testing. I have had 3 different blood tests to check my B12 level in the past year and all have come back over the range, as has...
  9. V

    Help With Blood Results Please

    Hello all, Two blood results that interest me that have came up are: High Serum Vitamin B12 - on 3 seperate occasions and I have not ever taken B12 as a supplement or indeed any Multi Vitamin Supplement for years. High Serum IgA - Due to the IgA and B12 I was sent to a Blood specialist to...
  10. V

    MCHC and B12 High

    Hello, Just wondering if anyone knows of a relationship between these tests? on two different blood tests: Feb 2013: Red Blood Cell Count: 5.58 (4.50-5.30) MCHC: 35 g/dl (31.5-34.5) B12: 790 ng/l (191-663) Sept 2013: Red Blood Cell Count: 5.53 (4.50-5.30) MCHC: 346 g/l (315.00-345.00) B12...
  11. V

    High Serum B12

    Hello, These are my full blood test results if anyone has any insight for me, I will put mostly the abnormal findings: 14/02/13 Serum Vitamin B12 - 790 ng/L ( 191-663 ng/L) Serum Folate - 9.4 ug/L (4.6 - 18.7 ng/L) Serum Vitamin D3 - 28 nmol/L Red Blood Cell Count - 5.58 (4.00-5.30) Mean...
  12. V

    High Serum B12

    Thanks for the links Ill check them out now, I just had further blood testing Sept 30th results were: CBC/FBC - Normal - red cell count slightly elevated white cell count perfectly normal. Blood Film - Normal Iron - Normal Liver Function - Normal Our lab range for b12 had a cut off at 660...
  13. V

    High Serum B12

    Just got the results from another blood test done on Mon 23rd Sept FBC/CBC - Normal including MCV normal, white cells right in the middle of the range Iron - Normal Folate - Normal B12 - High again....raised again from the last test in Feb. GP is giving me yet another blood test to recheck...
  14. V

    High Serum B12

    Hello all new to the forums. I apologise in advance for this very long post but my problems have become quite complex. History: I am 31 Years old, I have been on Testosterone Replacement Therapy for around 3 years, using the injection Nebido 1000mg (testosterone Undecanoate) every 8...