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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. D

    Does anyone return to work?

    After not working for almost two years, I am ready and able to return to work. I have searched and I can't find any threads about the problems associated with returning to work after long absences.
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    Help choosing insurance, antiviral coverage

    Many of the anti-virals are cheap. A 90 day supply of acyclovir costs $10 at Walmart. The biggie is valcyte, which is prohibitively expensive without insurance coverage. Some insurance plans will only cover it for a short period, others will not cover it for a cfs diagnosis. Very difficult...
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    artemisia for HHV-6

    I have asked in person at a couple of local pharmacies. Costco said $3,800. http://www.goodrx.com./valcyte/price is the best place I know to search prices. According to this website a month would cost me $1,645. However, it is common for doctors to double or triple the initial dosage making it...
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    artemisia for HHV-6

    Their assistant program is only for those who require transplants.
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    Are there gentler/less toxic alternatives to Valcyte for HHV-6?

    artemisia
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    artemisia for HHV-6

    Does anyone else have experience using artemisia for HHV-6? My doctor has recommended I take it. He said research has shown it to be effective. My doctor also wrote me a prescription for valcyte. But, 450mg per day of valcyte would cost me $3,800 per month and I can not afford it. Taking...