• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. ~ Ariel

    Hunting for the perfect Ecomode Plus or Fulleco cordless answerphone :-)

    Hello, While in dire straights, me phone has expired. I am hunting for the perfect ecomode Plus or Fulleco cordless phone to buy in the UK.. Little or no energy for research. I am hoping someone here may have looked into it. Wishlist ( tall order): Solidd and relatively simple to use. 2...
  2. ~ Ariel

    Shooting Down the Top 10 Myths from the NHS Online Clinic

    Hi Purple ~ Thanks! I am sometimes able to watch videos.
  3. ~ Ariel

    The role of psychology in chronic illness

    Helllo Cheesus, (et All), I am very glad for you that embracing the GUPTA program is making you feel so much happier ! I appreciate your motivation to expend treatments horizons - indeed, to me, this is an important function of investing oneself into communities such as PR - that sharing our...
  4. ~ Ariel

    N-acetylcysteine (NAC)

    Hii, Valentijn, Many thanks for your replies, and for moving the conversation here ! ~ Shall consider. For now, me PTSS (meaning: PTSD, except I do not resonnate with the word: " disorder" ;-) symptoms are SO acute, unwise to experiment ~using Avena Sativa (wild oats) & Passiflora herbal...
  5. ~ Ariel

    Shooting Down the Top 10 Myths from the NHS Online Clinic

    Hi, Valentijn, Many thanks! I am looking into it. Mind answering a few questions ( aware this is totally "off-topic"!) Which brand do you take? - are the caps/gels relatively small ( can't swallow large caps, because of vey swollen lymphs)~ also, I am extremely sensitive to smells; some...
  6. ~ Ariel

    Shooting Down the Top 10 Myths from the NHS Online Clinic

    PS - Oops ...trigger-happy: post went before I could insert your name, Valentijn ~
  7. ~ Ariel

    Shooting Down the Top 10 Myths from the NHS Online Clinic

    Hi Thank you for this ~ Shrude ! ~ Did you write On the nHS forum: " My sleep has been quite good, since I found a supplement to help with my brain being over-stimulated, and some other things to reduce pain...." If so, what please is the supplement which helped with brain firing...
  8. ~ Ariel

    Terminated after 20 years

    So sorry to hear, Roxie60 ! ~ Heartfelt sympathy and support ! ~ A crushing blow indeed ! ~ The question seems to me to be: How, but how could your employers be callous enough to treat you in such an impersonal, ruthless and cruel fashion after SO many years, knowing the consequences that...
  9. ~ Ariel

    Is there any reason NOT to take curcumin?

    Hello, dsdmom et All, Been taking curcumin /turmeric for 2 years now ~ as with all supplements, I operate on instinct ~ Suffer fro ISB, badly triggered par pepper (total no-no),chili, cayenne, any " hot" spices ~ No problem with curcumin, tolerate it fine, but that doesn't mean of course...
  10. ~ Ariel

    Daily Mirror: "The sympathy is greater for badgers than for disabled welfare claimants"

    Watching the recent badgers "ooh-ah" ufold on the news, I must say, I thought the same - also , sadly (all politics aside):The sympathy seems greater for badgers than for the current civilian atrocities in Syria? - Back to topic:I share your indignation on the benefits testing issues in England...
  11. ~ Ariel

    Numbness in legs?

    My pleasure ! ~ Ah! ~ That is very different from my case, a very specific trigger indeed ~ reading your reply makes me ponder as to just how much " Inspector Cluzot" talent & dedication each of us need to elucidating new symptoms, triggers, etc - ! ~ Best of luck, please keep us updated? ~
  12. ~ Ariel

    Numbness in legs?

    Hi, Sparrow Hawk, Ouch ! ~ New symptoms, hey ! ~ All my sympathy: 15 years on, I remain amazed at how they can spring up on me out of the blue ~ to put it politely: " what now ?! " ~ I have and continue to experience something similar to what you describe, but not quite identical ( amazed...