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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. J

    An ME/CFS specialist who can travel in UK or distance-prescribe?

    Thanks, this is useful. I've been in touch with both Dr Weir and Dr Enlander, but hadn't considered the fact that the former could act as a kind of intermediary between the NHS and the latter. I will see Enlander myself in New York, and discuss what can be done. My sister is 37 years old.
  2. J

    An ME/CFS specialist who can travel in UK or distance-prescribe?

    My sister is being admitted to a regional UK hospital after developing ME eight months ago. She can no longer move or eat with a straw, and will have to be tube fed. I would like her to be seen urgently by someone who can at least attempt a treatment (e.g. Ampligen, Rituximab, Vistide, etc)...