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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. A

    Low CDxx cell numbers

    Got an answer from a virologist regarding my test and symptoms. Hope this info is useful to others:
  2. A

    Low CDxx cell numbers

    sure, but please notice the 'deficiency' statement comes from my Doctor, not me. and yes, my clinical symptoms prove that obviously something's wrong with me.
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    Low CDxx cell numbers

    did you read my post above? my CD8 is very low (although still in the normal range), but low and thus my Dr. thinks I have a deficiency (like many people on this board by looking at their numbers) but he can't explain why.
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    Low CDxx cell numbers

    or it could be a known virus (e.g. HSV) that affects certain people in a different way due host particular characteristics (i.e. this wouldn't do anything in other people but it does a mess in us). Of course, this is just a theory.
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    Low CDxx cell numbers

    I keep track of my results here. Although my CD4 and CD8 are both in the normal range (CD4: 592 average count / 38% and CD8: 260 average count / 16% and CD4/CD8 ratio > 2) both are in the low side of the range, specially the CD8. Inmunologist has diagnosed me with a sort of immune deficiency...
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    New test detects all viruses that infect people

    Two new tests have been created recently, unfortunately they are not yet commercially available: ViroCap: New test detects all viruses that infect people, animals http://news.wustl.edu/news/Pages/28833.aspx VirCapSeq: Diagnostics Breakthrough Brings Viral Sequencing to Doctors’ Toolkit...
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    Can be CFS caused by a HIV-like infection?

    I wrote them if there's any chance I can take this test. I am based in Europe but I will travel to NY if I need to. Its a pitty I don't see initiatives like this in Europe.
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    Can be CFS caused by a HIV-like infection?

    Digging in the link shared by Hip I found this new technique which was just announced two months ago: "VirCapSeq-VERT enables detection of viral sequences in complex sample backgrounds, including those found in clinical specimens, such as serum, blood, and tissue. The highly multiplexed nature...
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    Can be CFS caused by a HIV-like infection?

    Hi, that's the idea with ViroCap: cheap and highly sensitive. Hope it will be approved but this will take years. Thanks for sharing the links!
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    Can be CFS caused by a HIV-like infection?

    everyone following this topic: there's a new test that dectets nearly any virus but unfortunately is not yet available to the public. however, I encourage everyone to contact the persons behind this research to see if there's any chance we can take this test...
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    Can be CFS caused by a HIV-like infection?

    House of Numbers = BS That documentary was created by Aids denialists and shouldn't be taking seriously. For the scientific evidence on HIV as the virus causing AIDS please refer to https://www.aidstruth.org/
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    Is it a new disease or its CFS ?

    No, everything related to HIV is negative. Can you give me the address, contacts of the hospital(s) in Italy where I can test for HTLV-PCR with tax amplifier?
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    Is it a new disease or its CFS ?

    Apparently there's a test that is able to detect nearly any virus that one may have: http://news.wustl.edu/news/Pages/28833.aspx Unfortunately the test is still not available to the public, but maybe we can ask how/if we can take it? I already wrote a mail to one of the professors involved in...
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    Retrovirus in salivary glands from patients with Sjgren's syndrome

    I used to be healthy as a horse but 2 weeks after an exposure (sexual intercourse/oral sex) in February 2012 I had an infection (including a swollen cervical node). About 4 months post exposure (June 2012) I started with dry mouth problems. Currently (July 2015) I am being treated as if I have...
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    Is it a new disease or its CFS ?

    Just Elisa not PCR. I am not far from Vienna and i haven't found where to do the PCR test. Does it possible to make it in Italy or somewhere else in Europe?
  16. A

    Is it a new disease or its CFS ?

    Well, I have already being tested for HTLV and it was negative. Tomorrow I will go to an ID specialist to ask for plaquenil or even AZT (both have been used to try sicca). Other infectologists I have been to say what I have is not infectious. Not sure what to think. Anyway, hope the ID...
  17. A

    Is it a new disease or its CFS ?

    My ID won't prescribe me antiretroviral drugs unless I am confirmed HIV which I am not. Being tested for virtually everything (its in the link I shared). I will ask for Plaquenil as this is used for Sjogrens. The girl who I think infected me with this unknown virus has promised me that she...
  18. A

    Is it a new disease or its CFS ?

    Initial symptoms? You mean you don't have those symptoms anymore? Because my sicca symptoms are chronic for nearly three years now and I still don't have any treatment plus I feel dryness is getting worst. Monday I am going to the doctor to see if she can start me on Plaquenil. My case...
  19. A

    Is it a new disease or its CFS ?

    Anyway here with sicca syndrome?
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    The AIDS-like Disease Seldom Mentioned

    He was quoting the same stuff HIV denialists spread everywhere: bla bla bla... I am sorry about Omar undiagnosed illness. I am myself on the same boat. But I would never try to put in question that HIV does causes aids which is what Omar in certain way tried to do here.
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    Is it a new disease or its CFS ?

    hi, i am attaching the document here.
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    Is it a new disease or its CFS ?

    have anyone here been tested with the PERT assay, a generic test for all retroviruses? details of the assay here the NRC in Zurich has it but maybe it can be ordered in another cities in Europe or the US? not sure if somewhere else.
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    The AIDS-like Disease Seldom Mentioned

    Didn't know this forum accepted HIV denialists. Putting in doubt that HIV causes aids is negligent, to say the least. Debunking denialist myths http://www.aidstruth.org/denialism/myths
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    What's your CD4/CD8 ratio?

    what's your age/gender if I may ask? numbers vary according these variables.
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    Dry Mouth

    Hi, i didn't post here for a while. i am a male, 37 years old now. i have not been (yet) diagnosed with SS (all blood tests negative) but next week I am going for a lip biopsy as a gammagraphy I had 2 weeks ago showed my salivary glands are not functioning properly. i have this dry tongue for...
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    What's your CD4/CD8 ratio?

    My numbers are here: https://docs.google.com/spreadsheet/pub?key=0AoXYb8O_eRNhdHdKVERqWk8wOFBuOWxGb0dNOUw5LVE&gid=3 my ratio is around 2. I have been ordering these tests since I have dry mouth problems (for two years now). They appeared out of the blue a few months after a sexual encounter...
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    Is it a new disease or its CFS ?

    Omar88, did you have a HIV PCR RNA test already?
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    CD4-CD8 Test Interpretation

    with HIV is common to see not a "low" ratio (I guess you mean a number closer to 1 but not below 1), but an inverted CD4/CD8 ratio. In other words, a number less than 1. The reason of this is that HIV infects CD4 cells. When this happens CD8 (T killer cells) think they (CD4 - T helper cells)...
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    CD4-CD8 Test Interpretation

    that number is completely normal and it means your inmune system is strong. A ratio less than 1 may indicate HIV infection.
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    Is it a new disease or its CFS ?

    can you share your new CD4/CD8 numbers? Extremely rare cases of HIV seronegative infection were found always with tests that directly detect the virus (unlike a 3rd Generaton Elisa or WB): "Twenty-five cases were identified that described patients with evidence of seronegative HIV-1...