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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. K

    VDR Bsm +/+ Vitamin D toxicity

    Sorry no I don't but I know I have read this recently again. I just cant tolerate Vit D, maybe the dose is too high for me. Still on a journey looking for the cause of my problems. I know I have adrenal fatigue proven on saliva stress testing but cannot pin point the cause of this. I am seeing...
  2. K

    So confusing- where to start

    I think my doctor runs on her own normal levels even at 13.4 ng/ml she wouldn't supplement me. I immediately bought high dose D3 5000IU which I have taken on and off since then. I haven't taken it for a few days and the muscle aches are going, so I must be sensitive to it. Will have to rely on...
  3. K

    So confusing- where to start

    Great thanks. I'm going to leave of the vitamin D for now as it makes me sick and concentrate on everything else first.
  4. K

    So confusing- where to start

    So no need to worry about vitamin D then?
  5. K

    VDR Bsm +/+ Vitamin D toxicity

    Just googled this and found links with hashimoto's patients of which I am not being able to process vitamin D.
  6. K

    VDR Bsm +/+ Vitamin D toxicity

    I am Homozygous for VDR Bsm my vitamin D is 24 ng/ml (April 2013) was 13.4 at lowest. I recently restarted vitamin D supplements 5000 iu daily but am having strange symptoms start again. I am not sure if it is because I haven't had any B12 recently and that is low also. I am nauseous, lost...
  7. K

    So confusing- where to start

    I'm having my fillings out on Friday, yippee! I've only got three small ones so he is doing them all together. I avoided all breads, biscuits, pasta, cows milk and cheese for a week and just felt worse. So am back on gluten free diet with above gluten free. Think I am having B12 deficiency...
  8. K

    So confusing- where to start

    Thanks everyone for your thoughts/ideas. I had read that gluten can cause problems with thyroid etc and that's when i tried going gluten free and it actually worked quite quickly. I was tested for coeliacs disease but had been off gluten for two weeks at that point and therefore the test was...
  9. K

    So confusing- where to start

    Yes I have Hashi's but normal TFT's except one where my TSH was 9.4. I agree staying completely GF is very hard but I do my best. I know when I have been glutened as my thyroid swells visibly. The thing I hate most is that you just cant eat out, I am in the UK and have yet to eat out and not be...
  10. K

    So confusing- where to start

    Thanks, I am only intolerant to gluten I appear to be ok with other foods. Gluten causes my thyroid to swell within 24 hours. I have been gluten free since Nov last year when I realized this, have had the occasional slip up when eating out which always causes the reaction I described above. I...
  11. K

    So confusing- where to start

    Hello I'm new here. I have been really unwell for about 8 months and on/off for a year in total. Symptoms are extensive - fatigue, brain fog, blurred vision,numbness tingling in face, arms and legs. Joint pains, stiffness, fevers, twitching, restless legs, insomnia, vertigo, lethargy, metallic...