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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. C

    Requesting help with treatment for homozygous a1298c

    Thanks for the replies, trying to find the right balance of b vitamins seems tricky for me. I seem to have a narrow window between fatigue and feeling too wired, and at least I thought it was the b vitamins but thyroid and dhea are great points to look into. And you are right, Dr. Ben never...
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    Requesting help with treatment for homozygous a1298c

    Roxie60, thanks for the input, I will definitely evaluate that. What were the doses? As I said I take 7.5mg twice a day and take 500mg of acetyl-L carnitine, about 2mg of dibencozide and 1250mcg of methylcobalamin. Valentijn, Genetic info is relevant to all races but risks are not the same...
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    Requesting help with treatment for homozygous a1298c

    Caledonia, Thank you for the information, I appreciate it. Federal law ensuring privacy only applies if you are an American and 23andme provides the best information if you are white. What if I am neither? There have been instances of individuals' identity being found out and this may not be...
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    Requesting help with treatment for homozygous a1298c

    xks201, thank you for the detailed info. I will ask my doctor to check into these tests and see what we find. I am very optimistic we will get this figured out! I am concerned about the 23andme test though for privacy and legal reasons...I will have to think about it and research it some more...
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    Requesting help with treatment for homozygous a1298c

    Thanks for the replies. I am familiar with the methylation pathway and your video didn't answer my question about the affect on the enzyme in both 677 and 1298, it was very basic. I have read a lot of Dr. Ben's site looking for answers and I have found that he does not think a1298c has an issue...
  6. C

    Requesting help with treatment for homozygous a1298c

    Hello, I am fairly new to this forum and diagnosis, and quite frankly, I am lost, confused and in need of help with treatment. I have found that most research seems to be around the 677 gene, but I am homozygous for the a1298c gene mutation and haven't been able to find definitive answers...