• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. TeresaBCN

    NHS MUS Page to be archived

    Ooops! Wrong file haha. Try this one
  2. TeresaBCN

    NHS MUS Page to be archived

    I wrote to complain about ME being covered on the NHS MUS Page. You can see the latest reply from them..very interesting if true...they say MUS page likely to be archived soon. I've asked for an explanation why and if it's to be replaced with something else. Will post the reply if and when I...
  3. TeresaBCN

    Study shows vagus nerve stimulation significantly reduces rheumatoid arthritis symptoms

    From the text: Several patients reported significant improvements, including some who had previously failed to respond to any other form of pharmaceutical treatment. In addition, no serious adverse side effects were reported. The emerging field of bioelectronic medicine aims to target...
  4. TeresaBCN

    Mobilizing mitochondria may be key to regenerating damaged neurons

    http://www.neuroscientistnews.com/research-news/mobilizing-mitochondria-may-be-key-regenerating-damaged-neurons
  5. TeresaBCN

    Fasting helps stop inflammation

    Yeah, I've never tried it on purpose cause of it making me dizzier, but I've seen quite a few papers quoting how fasting can help with inflammation. Could possibly try on it my next relapse and see what happens!
  6. TeresaBCN

    Fasting helps stop inflammation

    http://www.neuroscientistnews.com/research-news/genetic-switch-turned-during-fasting-helps-stop-inflammation
  7. TeresaBCN

    Seed sharing for Invest in ME

    If anyone is interested in sharing or buying seeds for small donations to Invest in ME please join the facebook group: https://www.facebook.com/groups/475463279310844/ Thanks
  8. TeresaBCN

    ASSSEM need 18,000 Euros to publish biomarker study

    I live in Barcelona - where the study is being run. It is the same study that they were raising money for last year. Somewhere on their website is says 12k already raised last year + 18k now needed. Not sure what they have been doing for the last year exactly....no explanation given apart from...
  9. TeresaBCN

    BBC - Chronic fatigue syndrome on rise among 16-year-olds

    http://www.westerndailypress.co.uk/Yuppie-flu-taking-toll-teens/story-28594735-detail/story.html The headline has now been changed to ' ...ME...is not yuppie flu' but the first line in the article starts - Yuppie flu affects 1 in 50.... What incompetence!
  10. TeresaBCN

    Extended B-cell phenotype in patients with ME/CFS: A cross-sectional study

    No idea, I thought it was just low blood flow...
  11. TeresaBCN

    Extended B-cell phenotype in patients with ME/CFS: A cross-sectional study

    Mine too
  12. TeresaBCN

    Is there any way I can be treated with rituximab privately?

    Does anybody know of any private clinics in the UK offering rituximab? I've tried google but no luck! Thanks
  13. TeresaBCN

    Virtual Work

    Oh dear, sorry about your horrible experience. I've never used it myself but my brother mentioned it to me last week as his company employs a couple of IT guys now and again from there. I was thinking of quitting my part time work as can't cope any more and doing some freelance IT work, maybe...
  14. TeresaBCN

    Virtual Work

    Now you can register as a freelancer at the same site that has moved to htps://www.upwork.com/ Looking at the conditions, the website takes a 10% cut of your fee.
  15. TeresaBCN

    Social Media - Community advocacy fail. Why?

    I agree with Kati above. I joined twitter 9 months ago. The problem is, if you follow 200 people/organisations like me, you get hundreds of tweets a day and so miss a lot, plus I only go on it a couple of times a week for short intervals so only see a small section of everybodies tweets. I...
  16. TeresaBCN

    Mitochondrial DNA stress primes the antiviral innate immune response

    Action for ME are due to start a research project soon on mitochondrial DNA: http://www.actionforme.org.uk/get-informed/research/our-research-related-activity/mitochondrial-dna-variation
  17. TeresaBCN

    Better with alcohol

    I know alcohol thins the blood, maybe that helps with the POTS. Helps with my dizziness to start with but then feel a lot worse an hour after!