Recent Activity

Activity stream for all registered members at Phoenix Rising ME / CFS Forums.

  1. Diwi9 liked debored13's post in the thread Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS.

    At this point I would pay for the mri too. But the doctor not even willing to TRY to get a preauthorization

    Dec 18, 2018 at 7:55 PM
  2. Mel9 liked 5vforest's post in the thread What Comes Next?.

    Two possibilities here: 1) one of the "viral onsets" could have actually been acute Lyme disease symptoms, which presents as a flu-like...

    Dec 18, 2018 at 7:54 PM
  3. wonderoushope liked StarChild56's post in the thread Cymbalta - Feeling more energetic and motivated.

    I really, really, really understand this feeling. I am so sorry. It just really sucks. Gentle hugs/positive vibes/wishes for...

    Dec 18, 2018 at 7:53 PM
  4. Murph liked dannybex's post in the thread Community symposium on molecular basis of ME/CFS at Stanford Discussion Thread.

    I suppose that's possible. It may be worth keeping in mind however that many with MTHFR polymorphisms (just as one example) aren't sick,...

    Dec 18, 2018 at 7:48 PM
  5. Murph liked nandixon's post in the thread Persistent fatigue induced by interferon-alpha: a novel, inflammation-based, proxy model of CFS.

    I like this study quite a lot, which is ironic given who the authors are. It's actually a potentially very important study because of...

    Dec 18, 2018 at 7:46 PM
  6. panspermia liked Gondwanaland's post in the thread Oxalate Dumping - a Probiotic Solution?.

    Poor Zinc metabolism involved in oxalate kidney stones. This is why B6 (and carnosine/carcinine) helps... Click the link for related...

    Dec 18, 2018 at 7:45 PM
  7. Diwi9 replied to the thread Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS.

    It's a freaking diagnostic, it's not the end or the world. Too many hang ups in medicine. If someone is sick and you don't understand...

    Dec 18, 2018 at 7:40 PM
  8. Diwi9 liked debored13's post in the thread Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS.

    The attitude is insane bc it’s a diagnosis that is more verifiable and simple than me/cfs. Not that me/cfs is not a legitimate dx but...

    Dec 18, 2018 at 7:38 PM
  9. i-lava-u liked jesse's mom's post in the thread Worried i will spoil Christmas.

    What a good idea! They might be old enough to do the treasure hunt and wait to open the gifts in your room? My kids are all over the US...

    Dec 18, 2018 at 7:38 PM
  10. Diwi9 replied to the thread Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS.

    That sort of attitude is really unhelpful. I have a CCI DX...do I know if it is legit? No, I'm going through steps now to determine...

    Dec 18, 2018 at 7:32 PM
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