Recent Activity

Activity stream for all registered members at Phoenix Rising ME / CFS Forums.

  1. mrquasar liked Jonathan Edwards's post in the thread IVIG Treatment.

    Personalised medicine has nothing to do with handing out unproven treatments and relying on subjective accounts of benefit. It is to do...

    Dec 12, 2017 at 8:22 AM
  2. sam.d liked JeanneD's post in the thread I definitely have PEM, does that mean I have ME/CFS.

    @sam.d That sounds like ME to me, but other conditions can produce some of those symptoms. What you need, imo, is a thorough work-up...

    Dec 12, 2017 at 8:21 AM
  3. sam.d replied to the thread I definitely have PEM, does that mean I have ME/CFS.

    @JeanneD this seems indeed like the smart way to go. I've just booked my first consult with De Meirleir's clinic. Thanks so much for...

    Dec 12, 2017 at 8:21 AM
  4. mrquasar liked Jonathan Edwards's post in the thread IVIG Treatment.

    I do not see any paradoxes, just the usual problems of poorly conducted research. All we have is anecdotal hearsay and some...

    Dec 12, 2017 at 8:21 AM
  5. mrquasar liked Jonathan Edwards's post in the thread IVIG Treatment.

    Sorry GG, I respect your approach and your need to find a solution but your case is no proof of anything. That is the raw truth. Science...

    Dec 12, 2017 at 8:16 AM
  6. mrquasar liked Jonathan Edwards's post in the thread IVIG Treatment.

    You have accused me of being disingenuous, which I think is disrespect because it implies being deliberately misleading. I may be wrong...

    Dec 12, 2017 at 8:16 AM
  7. Sandman00747 liked Hip's post in the thread Can the nervous system heal/reverse damage.

    Why should a functional disorder be any easier to cure than a structural disorder? If for example the dysfunction were caused by a...

    Dec 12, 2017 at 8:15 AM
  8. SueJohnPat liked shoponl's post in the thread ME is not mould intolerance; mould intolerance is not ME.

    An Alzheimer's researcher, Dr Dale Bredesen, identifies "IAD Inhalational Alzheimer's Disease" where neurological symptoms but not...

    Dec 12, 2017 at 8:09 AM
  9. jpcv liked PinkPanda's post in the thread IVIG Treatment.

    No, clininical experience is evidence that needs to be further investigated, analyzed and understood. Then, when you have more of a feel...

    Dec 12, 2017 at 8:09 AM
  10. jpcv liked Jonathan Edwards's post in the thread IVIG Treatment.

    Personalised medicine has nothing to do with handing out unproven treatments and relying on subjective accounts of benefit. It is to do...

    Dec 12, 2017 at 8:09 AM
  11. jpcv liked Jonathan Edwards's post in the thread IVIG Treatment.

    I do not see any paradoxes, just the usual problems of poorly conducted research. All we have is anecdotal hearsay and some...

    Dec 12, 2017 at 8:09 AM
  12. jpcv liked Jonathan Edwards's post in the thread IVIG Treatment.

    Sorry GG, I respect your approach and your need to find a solution but your case is no proof of anything. That is the raw truth. Science...

    Dec 12, 2017 at 8:09 AM
  13. Jonathan Edwards replied to the thread IVIG Treatment.

    Presumably you have not been reading the posts. This is exactly what I have said in full previously in the sense of clinical experience...

    Dec 12, 2017 at 8:08 AM
  14. notmyself replied to the thread Can the nervous system heal/reverse damage.

    how long did she sufferred for?

    Dec 12, 2017 at 7:59 AM
  15. notmyself liked Hip's post in the thread Can the nervous system heal/reverse damage.

    Why should a functional disorder be any easier to cure than a structural disorder? If for example the dysfunction were caused by a...

    Dec 12, 2017 at 7:57 AM
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