Recent Activity

Activity stream for all registered members at Phoenix Rising ME / CFS Forums.

  1. ScottTriGuy liked Lalia's post in the thread 2018 Dysautonomia International Conference: SFN, POTS, MCAS, Vagus Nerve Stimulation & CSF Leak.

    Thank you for tagging @Gingergrrl, I can’t wait to read the full articles tonight. I wouldn’t be surprised at all if a big subset of CFS...

    Jul 23, 2018 at 6:47 AM
  2. ScottTriGuy liked Gingergrrl's post in the thread 2018 Dysautonomia International Conference: SFN, POTS, MCAS, Vagus Nerve Stimulation & CSF Leak.

    I searched if this was already posted and did not see it (moderators, please merge if there is already an existing thread)! These are...

    Jul 23, 2018 at 6:47 AM
  3. pamojja liked alex3619's post in the thread The Mild, Moderate, Severe and Very Severe Levels of ME/CFS.

    Every now and again I read a post written by someone that I fully agree with, and am surprised. Then I check the author ... me, but I...

    Jul 23, 2018 at 6:47 AM
  4. Aroa liked Gingergrrl's post in the thread 2018 Dysautonomia International Conference: SFN, POTS, MCAS, Vagus Nerve Stimulation & CSF Leak.

    I searched if this was already posted and did not see it (moderators, please merge if there is already an existing thread)! These are...

    Jul 23, 2018 at 6:31 AM
  5. ChrisD liked Lassesen's blog entry Recap on Histamine Issues.

    I have done several posts on histamine issues over the last few years — some people close to me...

    Jul 23, 2018 at 6:23 AM
  6. Lalia liked Wally's post in the thread Solve ME/CFS Webinar--Deyra Unutmaz-- July 19, 2018.

    @Gemini - I was confused by you comment about Donna Pearson’s question at the CFSAC meeting asking if Unutmaz research would consider...

    Jul 23, 2018 at 6:21 AM
  7. percyval577 liked joanierav's post in the thread migrating pain on scalp as well as in ears, throat, eyes associated with blisters in mouth.

    hi antares. i get the blisters in my mouth, and they were cultured by infectious disease doctor. came back oral herpes simplex....

    Jul 23, 2018 at 5:43 AM
  8. percyval577 liked lafarfelue's post in the thread migrating pain on scalp as well as in ears, throat, eyes associated with blisters in mouth.

    Shingles is also known as Herpes Zoster. Herpes stays in the body forever, and it seems many PwME experience ongoing active symptoms of...

    Jul 23, 2018 at 5:42 AM
  9. percyval577 liked Wolfcub's post in the thread migrating pain on scalp as well as in ears, throat, eyes associated with blisters in mouth.

    I had shingles twice in the year 2000 and 2001. (Had chickenpox as a 3 year old) It was painful under my ribs. I used a herbal medicine...

    Jul 23, 2018 at 5:42 AM
  10. percyval577 replied to the thread migrating pain on scalp as well as in ears, throat, eyes associated with blisters in mouth.

    I experienced it before my mecfs. But it was "idiopathic" half a year after an antibiotic cure for borrelia. The docotor only said then:...

    Jul 23, 2018 at 5:39 AM
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