Hi everyone,
I haven't posted for a while. My condition deteriorate to the point that I am bedbound since 2 months now.
I'm not bedbound because I can't sit or walk but because I have a constant "brain on fire" and extreme brain fog.
It's difficult to explain but each time I try to force my brain to work, for example, watch TV or my phone, speak to my wife or my son, the pain, pressure and tinnitus increase. If I force, this cause severe nausea (not stomach related nausea, but nausea caused by pain).
If I try to walk I can but this cause an increase of all my brain symptoms.
I remarked a strange thing, when I walk a little and have to stop, it's not because I have pain in my muscle, but because my brain struggle my all "stimuli". It's like "vision input" when I try to move generate to much information and my brain become sensitized and say me "stop". My face look very tired and swollen.
It's not physical in sense of muscle Weakness.
So I'm confined in my bed, with no lights.
I have tested many supplements and treatments.
I would like to give nimotop a new try but my doc tell me that I can't take it when I take bisoprolol to manage my heart rate.
If you have ideas,
I can juste write a little.
Thanks, David
I haven't posted for a while. My condition deteriorate to the point that I am bedbound since 2 months now.
I'm not bedbound because I can't sit or walk but because I have a constant "brain on fire" and extreme brain fog.
It's difficult to explain but each time I try to force my brain to work, for example, watch TV or my phone, speak to my wife or my son, the pain, pressure and tinnitus increase. If I force, this cause severe nausea (not stomach related nausea, but nausea caused by pain).
If I try to walk I can but this cause an increase of all my brain symptoms.
I remarked a strange thing, when I walk a little and have to stop, it's not because I have pain in my muscle, but because my brain struggle my all "stimuli". It's like "vision input" when I try to move generate to much information and my brain become sensitized and say me "stop". My face look very tired and swollen.
It's not physical in sense of muscle Weakness.
So I'm confined in my bed, with no lights.
I have tested many supplements and treatments.
I would like to give nimotop a new try but my doc tell me that I can't take it when I take bisoprolol to manage my heart rate.
If you have ideas,
I can juste write a little.
Thanks, David