Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Thanks @Lisa108 . I waited from 3.30 to 5.30 (I think - was totally out of it) and then they turned me away because it was too late. They had over ran with their previous appointment because they didn't label the claim correctly as a complex appointment so they didn't schedule enough time for it. So that left me f**ked. Spent a lot of energy for nothing. Angry.