Prof Crawley hijacks ME Awareness Week to promote FITNET

[Countrygirl]

https://www.nihr.ac.uk/blogs/worries-that-keep-you-awake-at-night/8466

Just..........yuck!!!

Professor Esther Crawley, Professor of Child Health, University of Bristol

10 May 2018
What do you worry about at night? Some people worry about their careers, others worry about the end of the world. I worry about children who suffer because effective treatment is not available to them. I probably ought to worry about the starving millions or those that die because they cannot get vaccinated. But in the UK, there are children who suffer because they cannot get help for their CFS/ME, and this is something we really ought to be able to sort out.

With specialist treatment, about two thirds will get much or completely better within 6 months, returning to full time school with minimal, if any, symptoms

Without treatment, less than 10% will get better.

I think she made that up.

I see these children years later, as they travel to my clinic in Bath, desperate for hope and help.

We are testing whether this works with the FITNET-NHS trial which compares two different treatment approaches: online CBT and Activity Management delivered by Skype. We always use integrated qualitative methods in our trials but (tissue alert), some of what we hear is just so sad:

Tissue alert????

Delivering treatment online seems such an obvious way forward for teenagers it is slightly surprising it hasn’t been done before. My teenagers are often attached to the Wifi by an invisible umbilical cord so I would assume all teenagers would love online treatment. But not all do

I recall Esther saying at a lecture that she finds when she Skype's children she can't see them as they hide from her.

 

[Countrygirl]

https://twitter.com/i/web/status/994913534495674368

 

[Countrygirl]

https://twitter.com/i/web/status/994903036593090560

 

[Starlight]

Double treble yuk. This woman has no conscience which makes her a dangerous person. She should come with a health warning. Will she ever go away.? She wouldn' tt dare try this on adults. Vulnerable children and teens should be protected from her. I wish she would peddle her irresponsible dangerous lies elsewhere.

 

[ScottTriGuy]

I wish she would peddle her irresponsible dangerous lies elsewhere.

Like in the Arctic.

I would buy her the one way ticket.

 

[JaimeS]

It's pretty hideous. In a very real way, people are campaigning against that ideology. And she lays claim to our day to protest.

But what did you expect? Crawley is a good strategist -- things like this let the (uneducated) public know how hard she's fighting for us!

 

[alkt]

same old same a world class parasite making money of the sick and desperate without a care for all the extra suffering they cause. she's probably hoping for a knighthood to .

 

[CreativeB]

Scary

 

[Runner5]

I need an emoticon for a duck - QUACK, QUACK, QUACK

 

[SilverbladeTE]

It's pretty hideous. In a very real way, people are campaigning against that ideology. And she lays claim to our day to protest.

But what did you expect? Crawley is a good strategist -- things like this let the (uneducated) public know how hard she's fighting for us!

they are manipulative....

 

[pibee]

This woman has something really yucky about her, not saying this only because she is what she is, but when she speaks... histrionic personality disorder, something in that line.

Ow, yeah, I remembered. The way she talks looks like she is having mini orgasms while talking about being bullied by activists or anything serious she talks about.

 

[lilpink]

Just a reminder, when they hijack our ME hashtags, there’s always -


#harmedmetoo - exposing the harms caused by the psychosomatic model


If those who tweet want to register their feelings about Crawley's blog at @OfficialNIHRthen perhaps consider using #harmedmetoo

NB It's not just for ME sufferers, but for everyone harmed by the somatization claptrap, whose symptoms and problems are or were disregarded or ignored.


Don’t get mad, get even......... and spread the word.

 

[lilpink]

One good reason why I think Crawley's Bath ME/CFS clinic should close -

'I want my sister back' - http://www.bbc.co.uk/news/newsbeat-44094429 - Emily referring to her sister Maddie who went to the Bath clinic:


"They think it's psychologically based, they think she needs to go off and have therapies that we've already tried - so we know they won't work.

"The way I describe it is I'm actually grieving the loss of my sister because she's not around anymore. She's asleep 23-and-a-half hours a day and I want her back."