The Canary: MP calling for debate into one of the biggest medical scandals of our time

[Countrygirl]

The best article of the week?

https://www.thecanary.co/exclusive/...biggest-medical-scandals-of-the-21st-century/

An MP is calling for a debate into one of the ‘biggest medical scandals’ of the 21st century

A Scottish National Party (SNP) MP is calling for a debate into the controversy surrounding a disease she thinks will be one of the “biggest medical scandals of the 21st century”.

Calling for a debate
Glasgow North West MP Carol Monaghan has launched an early day motion in parliament on myalgic encephalomyelitis/chronic fatigue syndrome, commonly referred to as ME/CFS. An early day motion (EDM) is a request from an MP for a debate to be held. While the debates don’t always happen, the motions are good for gauging the levels of support among MPs for an issue. They also raise awareness of the particular topic the motion refers to.

Monaghan’s EDM says:

That this House recognises Myalgic Encephalomyelitis (ME) Awareness Week from 7 to 13 May 2018, which aims to highlight the impact this invisible illness has on 250,000 people across the UK; recognises the fantastic work campaigners and charities are doing to highlight ME as a physical condition which is not all in the mind; acknowledges the detrimental effect of the PACE trials and its results, and the work which is being done to reverse this; and encourages people to go blue for ME across the week, to further bring this illness out of the shadows and into the spotlight.

For the thousands of people living with ME/CFS in the UK, a parliamentary debate can’t come soon enough.

 

[IThinkImTurningJapanese]

For the millions of people living with ME/CFS worldwide, a parliamentary debate can’t come soon enough.

 

[Westley]

would be nice if in the u.s we got the same attention?

 

[Countrygirl]

would be nice if in the u.s we got the same attention?

You really don't want the sort of attention we have in the UK @Westley . Here it means GET and CBT with a psychiatric diagnosis and with the new WHO criteria it is about to get worse as we are all shoved into the psychiatric waste bin.

 

[CFS_for_19_years]

It is a great article. Minor point: they missed a great opportunity to link to the film Unrest:

Time for unrest
‘Being heard’ is what Millions Missing is all about. With Monaghan raising the issue in parliament and people with ME/CFS doing it online and on the streets, maybe soon the millions of people who have been disbelieved, stigmatised, given incorrect treatment or ultimately told it’s ‘all in their heads’ will get the justice, support and treatment they deserve.

 

[CreativeB]

Let's hope she's successful