I will soon see a neurologist with knowledge of dysautonomia. A tilt table test will be performed but i find that a bit shortcoming for a proper diagnosis because there are several subtypes and causes for this disease.
What is the absolute golden standard to diagnose the type of dysautonomia besides positive or negative TTT?
Like measuring noradrenaline pre and post TTT? Measurement of other catecholamines? Measurement of blood volume?
Are there any guidelines?
I'm bored of guessing and want to do a complete diagnostic workup.
My symptoms:
- Feeling sick, restless and even more fatigued when standing for a longer period of time. When i lay down i get back to my ME-self.
- Severe heat intolerance, this is the biggest trigger. It's been quite hot today so i'm floored, my veins are badly dilated and hurt. Because of this i can't take a warm bath or shower.
- Heart rate jumps 30+ BPM from a horizontal to vertical position.
- I get breathing problems, like i have to force myself to breathe when the dysautonomia is at its worst.
I'm so sick of this, i wished it was winter already!
Thanks for any advice.
What is the absolute golden standard to diagnose the type of dysautonomia besides positive or negative TTT?
Like measuring noradrenaline pre and post TTT? Measurement of other catecholamines? Measurement of blood volume?
Are there any guidelines?
I'm bored of guessing and want to do a complete diagnostic workup.
My symptoms:
- Feeling sick, restless and even more fatigued when standing for a longer period of time. When i lay down i get back to my ME-self.
- Severe heat intolerance, this is the biggest trigger. It's been quite hot today so i'm floored, my veins are badly dilated and hurt. Because of this i can't take a warm bath or shower.
- Heart rate jumps 30+ BPM from a horizontal to vertical position.
- I get breathing problems, like i have to force myself to breathe when the dysautonomia is at its worst.
I'm so sick of this, i wished it was winter already!
Thanks for any advice.