Martin aka paused||M.E.
Senior Member
- Messages
- 2,291
I am now very severe. Can’t do No thing
Even turning around in bed makes me crash
Scared
What can I do???
Even turning around in bed makes me crash
Scared
What can I do???
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Cant stand up... Not Even a Second ... cant sit... how do you solve the toilet issue?
My parents caring
‘Sorry to see this so bad. Geez, it’s got to be awful. In commiserating, I think beyond any of my own personal recollections. No advice - can’ think of anything but nothingness.@Shoshana i cant get up with help
Yes i am visualizing nice memories... but it is really hard
What can I do???
Cant stand up... Not Even a Second ... cant sit... how do you solve the toilet issue?
My parents caring
I am sorry to hear this @MartinDH and hoping you start to feel some relief soon. I was curious about the astronauts food that you said your doctor brought you. What does this involve? Were you getting allergic reactions to food?
Please forgive me if I have confused you with someone else, but were you the one who said that when your psoriasis was better, your other symptoms got worse or you would crash? If so, is that the case this time, too? I was always curious about this from an autoimmune perspective and what it might mean?