Starsister
Senior Member
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- 834
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I am desparate to speak with anyone who can relate to the kind of pain I am having right now. From what I read, it could be called Allodynia, but I just read some blog elsewhere and what was being described was no where near as excruciating as what I am having and have had for years. I went from being normal pains today, to sitting in soft chair to work for two hours, but when I laid down to rest every nervevending in my body caught fire from head to toe. I've had this for years where I'm in tears and all I can do is lay on one side in bed with as little touching my skin as possible, as little pressure as possible. I can't even lay on my right side due to sciatica for years. So I just lay here and cry from the pain that no dry will acknowledge..and all these years never identified a trigger for from my diet or activity at least. I can't believe anyone us here xpected to go on living like this.
My symptoms are...my hip, rear and back of thighs are most painful as they get constant pressure from sitting or laying down on back. The feeling in those parts are like it is o e large bruised area hurting from any pressure. But then on top of that...literally on my skin...I feel like I'm on fire all over with burning, millions of needles. It literally is all over my body from my toes to touching my hair. In desperation I took a bit ago two Aleve, 600 mg of gabapentin, 5 mg of Valium, kava kava, and covered myself in biofreeze..leaving all my clothes off and laying on my side with head flat on mattress. Then I took 1/4 pill of hydrocodone...opioids typically just make me itch and have no effect on pain, except if I take it with a Valium I can get a full feeling in my head which helps distract me a bit from the pain. Starting to feel well enough to lay on back a bit, putting pressure on my tender body parts, but at least I can hold my iPad up to type this. All the skin pain also just quickly gives me a throbbing feeling all over and in my head so got ice on my head and moving it around on different parts that are still burning.
Of all the crazy symptoms I get from this crazy illness, or co morbid with something, this burning pain is what will drive me to purposely take every single pull I have to die. When I'm hurting that much, I just do t care anymore, I become so frantic to end the pain.
Is anyone struggle with this to this extreme? Does Allodynia make sense? My gp is worthless so went to soecialists last summer and the neurologist just said any pain that is not in my hands, feet arms of legs, is not his business! Well I've had for no apparent cause, neuropathy in my extremities since the late 80s but I've learned to live with that, but this burning where I can't get relief in any position because it is everywhere, is going to kill me.
I'm desperate for resources, articles, just to manage the symptom..I gave up on recovery from CFS and fibro years ago. It would just be nice to talk to one other person who can relate to what this is so I don't feel so alone. Places just refer me to fibro pain sites but this is so different, and it's not a localized area that can be treated by a physical therapist like some sites suggest. Please help.
My symptoms are...my hip, rear and back of thighs are most painful as they get constant pressure from sitting or laying down on back. The feeling in those parts are like it is o e large bruised area hurting from any pressure. But then on top of that...literally on my skin...I feel like I'm on fire all over with burning, millions of needles. It literally is all over my body from my toes to touching my hair. In desperation I took a bit ago two Aleve, 600 mg of gabapentin, 5 mg of Valium, kava kava, and covered myself in biofreeze..leaving all my clothes off and laying on my side with head flat on mattress. Then I took 1/4 pill of hydrocodone...opioids typically just make me itch and have no effect on pain, except if I take it with a Valium I can get a full feeling in my head which helps distract me a bit from the pain. Starting to feel well enough to lay on back a bit, putting pressure on my tender body parts, but at least I can hold my iPad up to type this. All the skin pain also just quickly gives me a throbbing feeling all over and in my head so got ice on my head and moving it around on different parts that are still burning.
Of all the crazy symptoms I get from this crazy illness, or co morbid with something, this burning pain is what will drive me to purposely take every single pull I have to die. When I'm hurting that much, I just do t care anymore, I become so frantic to end the pain.
Is anyone struggle with this to this extreme? Does Allodynia make sense? My gp is worthless so went to soecialists last summer and the neurologist just said any pain that is not in my hands, feet arms of legs, is not his business! Well I've had for no apparent cause, neuropathy in my extremities since the late 80s but I've learned to live with that, but this burning where I can't get relief in any position because it is everywhere, is going to kill me.
I'm desperate for resources, articles, just to manage the symptom..I gave up on recovery from CFS and fibro years ago. It would just be nice to talk to one other person who can relate to what this is so I don't feel so alone. Places just refer me to fibro pain sites but this is so different, and it's not a localized area that can be treated by a physical therapist like some sites suggest. Please help.