I was diagnosed with cfs last summer. I' h 2 years of chronic fatigue prior to this.
In October I started with bad anxiety, I have anxiety anyway but a setback hit. I also have SADs so in the winter I often have a flare of anxiety and depression. This winter it has been much worse and the anxiety was awful. I was shaking for 12 hours a day, unable to function due to how weak, sick, shaken, dizzy etc I felt. I ended up bed ridden mostly too afraid to walk around as I felt so horrific. I was having 10 hour panic attack on my bed terrified to move, it was devastating.
Things have improved anxiety wise the last month which is such a relief but in the last 3 weeks fatigue hit me very hard. It's been especially bad this last week. My husband says he isn' ssurprised after all I've just been through with crippling anxiety and panic.
When I first had cfs, for 18 months I'd daily feel fatigued and weak so functioning at home was tough but I'd crash if I over did things or any anxiety and stress. When I crashed though my worst symptom was weak burning thighs and the drained weak body. This time I'm not getting that. My cfs improved over last summer by 50%, now it' rreturned my symptoms feel different in some ways.
I' nnot having PEM as such, because I'm not over exerting myself. Ever since the bad anxiety where I was almost bed ridden I've been unable to do much. My heart races and I feel drained doing anything so I know I've deconditioned. Daily though this is how I feel and my anxiety is high again but more in a worrying about health way than panic and daily physical symptoms. It's more worrying constantly it's something more sinister and I'm going to die.
Daily I feel like this..
An all over flat battery feeling. Whole body just feels drained.
When I walk about I'm hunched over, feel weak and just too drained to be walking.
Heart races walking about and after 15 minutes I sit down and it takes a while for me to feel better. I feel I've done a workout doing anything.
Woozy head where I feel off balance walking about sometimes.
When I sit up from lying down I get a low BP feeling in my head but checking bp it doesn't drop. It goes up when I sit up or function.
Nausea and ibs issues which I think is the fear about how bad I feel as it scares me.
Achy heavy eyes.
Fuzzy cotton wool brain fogged head.
Tire just talking, have to take a break talking after 15 minutes as I feel light headed and woozy talking too much.
So I just generally feel drained, hunched over walking and feel too ill to be walking about. Then when I do walk about it drains me further. The last 2 days I've felt worse than usual. I showered yesterday morning, shower every other day since this fatigue hit and yesterday I really felt too ill to be in the shower but forced myself and spent all morning feeling horrific for showering. I dread showers and hair washes.
I'm not getting the same burning weak thighs I used to get so I keep worrying is this cfs. My friend and hubby think this is all a come down from 3 months of severe anxiety and SADs. I really hope so but I'm worrying myself this isn't cfs if I daily feel this bad and it's not pem as such, it's every day I feel like this. My fired says of course that's cfs, you can feel very ill every day, not just pem. I have never had the sore throat, raised glands or sleeping in the day. I get tired in my eyes of course but it's more this broken body feeling. I can never nap in the daytime.
Can anyone relate? It's so hard as I'm a mum to 3 children and I've felt such a let down to them and my hubby.
Jem
In October I started with bad anxiety, I have anxiety anyway but a setback hit. I also have SADs so in the winter I often have a flare of anxiety and depression. This winter it has been much worse and the anxiety was awful. I was shaking for 12 hours a day, unable to function due to how weak, sick, shaken, dizzy etc I felt. I ended up bed ridden mostly too afraid to walk around as I felt so horrific. I was having 10 hour panic attack on my bed terrified to move, it was devastating.
Things have improved anxiety wise the last month which is such a relief but in the last 3 weeks fatigue hit me very hard. It's been especially bad this last week. My husband says he isn' ssurprised after all I've just been through with crippling anxiety and panic.
When I first had cfs, for 18 months I'd daily feel fatigued and weak so functioning at home was tough but I'd crash if I over did things or any anxiety and stress. When I crashed though my worst symptom was weak burning thighs and the drained weak body. This time I'm not getting that. My cfs improved over last summer by 50%, now it' rreturned my symptoms feel different in some ways.
I' nnot having PEM as such, because I'm not over exerting myself. Ever since the bad anxiety where I was almost bed ridden I've been unable to do much. My heart races and I feel drained doing anything so I know I've deconditioned. Daily though this is how I feel and my anxiety is high again but more in a worrying about health way than panic and daily physical symptoms. It's more worrying constantly it's something more sinister and I'm going to die.
Daily I feel like this..
An all over flat battery feeling. Whole body just feels drained.
When I walk about I'm hunched over, feel weak and just too drained to be walking.
Heart races walking about and after 15 minutes I sit down and it takes a while for me to feel better. I feel I've done a workout doing anything.
Woozy head where I feel off balance walking about sometimes.
When I sit up from lying down I get a low BP feeling in my head but checking bp it doesn't drop. It goes up when I sit up or function.
Nausea and ibs issues which I think is the fear about how bad I feel as it scares me.
Achy heavy eyes.
Fuzzy cotton wool brain fogged head.
Tire just talking, have to take a break talking after 15 minutes as I feel light headed and woozy talking too much.
So I just generally feel drained, hunched over walking and feel too ill to be walking about. Then when I do walk about it drains me further. The last 2 days I've felt worse than usual. I showered yesterday morning, shower every other day since this fatigue hit and yesterday I really felt too ill to be in the shower but forced myself and spent all morning feeling horrific for showering. I dread showers and hair washes.
I'm not getting the same burning weak thighs I used to get so I keep worrying is this cfs. My friend and hubby think this is all a come down from 3 months of severe anxiety and SADs. I really hope so but I'm worrying myself this isn't cfs if I daily feel this bad and it's not pem as such, it's every day I feel like this. My fired says of course that's cfs, you can feel very ill every day, not just pem. I have never had the sore throat, raised glands or sleeping in the day. I get tired in my eyes of course but it's more this broken body feeling. I can never nap in the daytime.
Can anyone relate? It's so hard as I'm a mum to 3 children and I've felt such a let down to them and my hubby.
Jem