Gemini
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December 13-14, 2017 CFSAC Meeting (In Person)
This Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting will take place at the Hubert H. Humphrey Building, 200 Independence Avenue, Suite 800, S.W., Washington, D.C. 20201.
www.hhs.gov/live
Call in number: (888) 469-1760
Participant passcode: 4510479
Agenda
Day 1
9:00 a.m. Call to Order, Roll Call, Logistics
CDR Gustavo Ceinos, MPH Designated Federal Officer
9:10 a.m. Opening Remarks
Faith Newton, Ed.D Chair, CFSAC
Nicole Greene Acting Director, OWH
Don Wright, M.D., M.P.H.Acting Assistant Secretary for Health
9:25 a.m. Swear In two of three new CFSAC Members: Don Wright, M.D., M.P.H.
9:30 a.m. Approval of minutes from the last CFSAC meeting: CFSAC Members
9:45 a.m. Updates of implementation of recommendations from the last CFSAC meeting
CDR Gustavo Ceinos, M.P.H.Designated Federal Officer
Ermias Belay, M.D.Centers for Disease Control and Prevention
10:00 a.m. Agency Updates and Questions
Centers for Disease Control and Prevention: Ermias Belay, M.D.
Food and Drugs Administration: Keith Hull
Social Security Administration: Michele Schaefer
11:00 a.m. Presentation from Liaison Organizations
Simmaron Research, Inc: Courtney Miller
Massachusetts CFIDS/ME & FM Association: Leah Williams
ME Action: Terri Wilder
11:45 a.m. Report from the Medical Education Work Group: Gary Kaplan, M.D.Working Group Chair
12:30 p.m. Lunch
1:30 p.m. Discussion Medical Education Work GroupPresentation and Recommendations: CFSAC Members
2:30 p.m. Public Comments: Members of the Public
3:30 p.m. Adjourn
Day 2
9:00 a.m. Call to Order, Roll Call :CDR Gustavo Ceinos, MPHDesignated Federal Official
9:10 a.m. Opening Remarks: Faith Newton, Ed.D Chair, CFSAC
9:20 a.m. Agency Updates
National Institutes of Health: Vicky Whittemore, Ph.D
Health Resources & Services Administration: CAPT Sophia Russell, DM, MBA, RN
Agency for Healthcare Research & Quality:Theodore Ganiats, M.D.
Department of Veteran Affairs Drew A. Helmer, M.D., M.S.
11:00 a.m. Public Comments: Members of the Public
12:00 p.m. Lunch
1:00 p.m. Report from the Pediatric Education Working Group and Parent Information Center Update:
Faith Newton, Ed.D Chair, CFSAC and Carmen Sanchez:Education Program Specialist, US Departmentof Education
1:45 p.m. Break
2:00 p.m. Research Update on Adults ME/CFS: Jose Montoya, M.D. CFSAC Member
3:00 p.m. Research Update on Pediatric ME/CFS
(Calling in) Rosamund Vallings, M.D.Invited Speaker, Howick Health and Medical Auckland, New Zealand
4:00 p.m. Closing Remarks and Next Steps: Faith Newton, Ed.D and CDR Gustavo Ceinos, M.P.H.
5:00 p.m. Adjourn
**Final agenda subject to change due to availability of speakers
EDIT: add link
https://www.hhs.gov/ash/advisory-committees/cfsac/meetings/2017-12-13/index.html
This Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting will take place at the Hubert H. Humphrey Building, 200 Independence Avenue, Suite 800, S.W., Washington, D.C. 20201.
www.hhs.gov/live
Call in number: (888) 469-1760
Participant passcode: 4510479
Agenda
Day 1
9:00 a.m. Call to Order, Roll Call, Logistics
CDR Gustavo Ceinos, MPH Designated Federal Officer
9:10 a.m. Opening Remarks
Faith Newton, Ed.D Chair, CFSAC
Nicole Greene Acting Director, OWH
Don Wright, M.D., M.P.H.Acting Assistant Secretary for Health
9:25 a.m. Swear In two of three new CFSAC Members: Don Wright, M.D., M.P.H.
9:30 a.m. Approval of minutes from the last CFSAC meeting: CFSAC Members
9:45 a.m. Updates of implementation of recommendations from the last CFSAC meeting
CDR Gustavo Ceinos, M.P.H.Designated Federal Officer
Ermias Belay, M.D.Centers for Disease Control and Prevention
10:00 a.m. Agency Updates and Questions
Centers for Disease Control and Prevention: Ermias Belay, M.D.
Food and Drugs Administration: Keith Hull
Social Security Administration: Michele Schaefer
11:00 a.m. Presentation from Liaison Organizations
Simmaron Research, Inc: Courtney Miller
Massachusetts CFIDS/ME & FM Association: Leah Williams
ME Action: Terri Wilder
11:45 a.m. Report from the Medical Education Work Group: Gary Kaplan, M.D.Working Group Chair
12:30 p.m. Lunch
1:30 p.m. Discussion Medical Education Work GroupPresentation and Recommendations: CFSAC Members
2:30 p.m. Public Comments: Members of the Public
3:30 p.m. Adjourn
Day 2
9:00 a.m. Call to Order, Roll Call :CDR Gustavo Ceinos, MPHDesignated Federal Official
9:10 a.m. Opening Remarks: Faith Newton, Ed.D Chair, CFSAC
9:20 a.m. Agency Updates
National Institutes of Health: Vicky Whittemore, Ph.D
Health Resources & Services Administration: CAPT Sophia Russell, DM, MBA, RN
Agency for Healthcare Research & Quality:Theodore Ganiats, M.D.
Department of Veteran Affairs Drew A. Helmer, M.D., M.S.
11:00 a.m. Public Comments: Members of the Public
12:00 p.m. Lunch
1:00 p.m. Report from the Pediatric Education Working Group and Parent Information Center Update:
Faith Newton, Ed.D Chair, CFSAC and Carmen Sanchez:Education Program Specialist, US Departmentof Education
1:45 p.m. Break
2:00 p.m. Research Update on Adults ME/CFS: Jose Montoya, M.D. CFSAC Member
3:00 p.m. Research Update on Pediatric ME/CFS
(Calling in) Rosamund Vallings, M.D.Invited Speaker, Howick Health and Medical Auckland, New Zealand
4:00 p.m. Closing Remarks and Next Steps: Faith Newton, Ed.D and CDR Gustavo Ceinos, M.P.H.
5:00 p.m. Adjourn
**Final agenda subject to change due to availability of speakers
EDIT: add link
https://www.hhs.gov/ash/advisory-committees/cfsac/meetings/2017-12-13/index.html
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