As a mum who's had a very ill child, and whose been through a lot of blind alleys and bureaucracy on the way to a cure, it seems like the priority of the mum here should be to prevent damage to the child at all costs. If the child is damaged, it makes everything more difficult going forward. And GET would be damaging.
So, a multipronged attack might increase odds of success.
First, with the GP. As has been pointed out, have all other diagnoses been discarded? Has the child's immune system been tested - T cells, B cells, immunoglobulins with subclasses, autoimmune antibodies? Any look at the CSF? How about infections - have IgG, IgA, IgM, and PCR tests (as appropriate) been run on all the common viral suspects? B12 and other vitamin deficiencies? Iron panel? Mitochondrial function, carbon dioxide, POTS or CPET testing? Endocrine testing? Genetic testing? Could it be mitochondrial disease?
If not, a letter from a lawyer requesting that due diligence be done with the missing tests prior to any forced action being taken. This should buy some time. I believe a lawyer has already volunteered if I read correctlybon the other thread.
Next, a website with the current research should be put up - does this exist anywhere? It could be pointed to for info, or used to tell the girl's story, and to educate the news media and public. With the NIH research Centers of Excellence announcements, the IOM info, the CDC change, the September STAT news article, the NICE Guideline reconsideration announcement and the International ME/CFS Pediatric Guide.. And links to research mentioned here and by Naviaux, Chris Armstrong, Neil McGregor, Alan Light, Maureen Hanson, Susan Levin, Mady Hornig, Ian Lipkin, Nancy Klimas, Jonas Bergquist, Andreas Kogelnick, Maes and Morris, Garth Nicholson, Sarah Myhill, Martin Lerner, John Chia, as well as Solve ME/CFS and OMF links.
Then, politicians. Can the Countess of Mar or any politicians who responded to Unrest be drafted to prod the local medical authority into backing off of the forced treatment, using the website as an educational tool?
Then, interest the news media, using the parallel with Karina's story? With the GP's or EC's pronouncements, the lawyers and politicians letters, and any lab work confirming a biological disease?
Finally, this underscores a search for what is wrong with the girl, and getting her proper diagnosis and appropriate treatment. This, above all, is the goal. She and her mum need help in finding the answers and working towards symptom improvement, if not a cure.
Best wishes to the mum, the girl, and their family...persistence pays off. And what habectgey to lose?