Something Strange Happened

[SmokinJoeFraz93]

Something strange happened this evening. All day I have been in bed feeling ‘rough’. Unable to watch TV or listen to audio due to me feeling an odd stressful sensation in my head when I do so.

I arranged to meet my brother at his place to watch a movie, when I got there and sat down, I realised that the symptoms I have been feeling today (fatigue/exhaustion and TV/AUDIO sensitivity) had gone.

Very strange. Any ideas guys? I know what a shrink would say haha! “It’s all in your head”.

 

[boombachi]

I often feel better in the evening but only if I have rested during the day. There is another thread on here about the same subject. It is something others experience too.

 

[SmokinJoeFraz93]

I often feel better in the evening but only if I have rested during the day. There is another thread on here about the same subject. It is something others experience too.

Thanks

 

[Plum]

Is it possible you're reacting to something in your home that doesn't exist at your brother's? I do feel better at night too. Sometimes, resting all day can improve things, particularly with no tv or radio etc.

 

[tumbleweed]

How did you get from your home to your brother's home? Did the journey involve fresh air? Does your home have all the windows tightly closed? Does your brother's home have all the windows tightly closed and yours doesn't? (I'm thinking of pollution? Low oxygen levels? High carbon dioxide?)

I have the feeling I'm scraping the bottom of the barrel for ideas. I generally tend to feel better in the evenings, too.

 

[Murph]

I sometimes feel better in other places. and at night. and with friends. And after I spent the whole day resting!

Sadly there's too many variables to figure out your situation from the info presented!

 

[Seven7]

I think we get adrenaline shots kind of inappropriately. Did you came down really hard afterwords???
That is how I know for me, I get this high then the crash afterwards.

 

[Marky90]

I can relate to this scenario, but its usually followed by some sort of crashy shenanigans later

 

[SmokinJoeFraz93]

Thanks for the reply guys. There’s a lot of theories as to why I felt a positive shift in how I felt. The mind and body is bloody weird.

 

[Mary Poppins]

Maybe you just had an upwards fluctuation like so many of us do? Hopefully it stays around for you for a long while

 

[SmokinJoeFraz93]

Maybe you just had an upwards fluctuation like so many of us do? Hopefully it stays around for you for a long while

Exactly. That’s what I’ll put it down to. Embrace the good days whilst they last.

 

[Mary Poppins]

Good plan, buddy

 

[minis78]

I was told by my specialist that social contact even if you don't feel up to it is super important to feeling better. I have essentially but out 99% of my social contact (immediate family not included) and I find I focus more on how crappy I feel. Perhaps being around someone who has energy helps you lift up a bit as well?

 

[gregh286]

Ebbs and flows of cfs.
Still happens me. What did i eat....supplements..etc.
Can never nail it down.
Predictably unpredictable cfs.

 

[wonderoushope]

I think we get adrenaline shots kind of inappropriately. Did you came down really hard afterwords???
That is how I know for me, I get this high then the crash afterwards.

I have this too. I notice if I am around people I can be really pumped up and feel quite full of energy then totally crash the next day. I sometimes feel like I have bipolar, ADD or something like that.

 

[Dechi]

I think your body is just using its energy reserves to allow this activity. When it’s over, you’ll feel worse because you now have to refill the depleted energy bucket.

This also explains why PWME are able to find enough energy to move out of their houses, for example. Or take care of an emergency, even when they felt like crap.

 

[PatJ]

This also explains why PWME are able to find enough energy to move out of their houses, for example. Or take care of an emergency, even when they felt like crap.

The amount of energy someone can tap into depends on severity for the PWME. I'm between moderate and severe. When I had to move into a new house it took me two months to pack up my small amount of belongings because I could only pack a little every day while trying to stay within my energy envelope (and I still got PEM on some days). On the day of the move I only had to travel a few miles but I was still left with PEM for five days after. Someone who is bedbound with severe ME probably wouldn't have the energy to save themselves if their house caught fire.

 

[Dechi]

The amount of energy someone can tap into depends on severity for the PWME. I'm between moderate and severe. When I had to move into a new house it took me two months to pack up my small amount of belongings because I could only pack a little every day while trying to stay within my energy envelope (and I still got PEM on some days). On the day of the move I only had to travel a few miles but I was still left with PEM for five days after. Someone who is bedbound with severe ME probably wouldn't have the energy to save themselves if their house caught fire.

Yes, of course.