vision blue
Senior Member
- Messages
- 1,877
Just when I started a couple of new threads here (beta alanine and taurine) and got some PMs too - it's all been interrupted. Mostly just wanting to let people know who happen to see this that I will resume as quickly as I can and thanks.
Quick version is since sunday, having amother one of these "autonomic attacks" which feels like sympthetic nervous system highly active and wont shut off. dragged myself to an urelated doctor for a scheduled appt on tuesday, and they didn't like that my bp was 190/100; they wanted me to go to the ER, but I did not. That night though it got worse after taking some meclizine and by next morning at 5 am i thought i might be stroking out or something so had to call 911. sigh.
but i got triaged wrong. I said my heart was pounding and figured i'd give details to the doc, which i did. but by then it was too late. from the moment you open your mouth to the paramedics, you can pigeon holed and so i was put in the "chest pain" pigeon hole and run thru the mindless one size fits none protocol before i ever even got to see the doc.
my pressure was still at 190/100. he offered to bring it down by iv, but it wasn't clear what would happen when i got home. they oral meds they suggested for home would have killed me since had potassium in it, which makes me sick. so i had to decline. I thought they should have admitted me, as much as I don't like hospitals. So instead, having judged that I did not have a heart attack, they released me, saying to see both endocrninologist and cardiologist in the next 2 days; yeah right. we know how new patient appts go.
so been non stop on the phone trying to arrange things. for once, people have been helpful since they all agree this is not a state I should have to stay in for long as its damaging.
too much to say, but that's enuf since have no idea how this relates to the cfs, except that 3-4 years ago something started changing when i got these attacks. even between attacks my synmpatehetic nervous system never seems to fully close off. I was reading some threads by people here with neural autoantibodies and a simliar sounding case that also started with a herpes virus.
lesson learned: if i have to go to the ER ever again, do whatever it takes to get put in the pigeon hole i think will be most productive for me, even if it means not mentioning symptoms at first that might incorrectly put me in a more popular but less useful bin. So i should have said "I suspect andrenergic storm", not "my heart is pounding" (I happen to hear my heart when my bp goes up but everyone thinks of bp as "silent' so they misterpreted my statement). Still can't beleive they let me go in that state.
Quick version is since sunday, having amother one of these "autonomic attacks" which feels like sympthetic nervous system highly active and wont shut off. dragged myself to an urelated doctor for a scheduled appt on tuesday, and they didn't like that my bp was 190/100; they wanted me to go to the ER, but I did not. That night though it got worse after taking some meclizine and by next morning at 5 am i thought i might be stroking out or something so had to call 911. sigh.
but i got triaged wrong. I said my heart was pounding and figured i'd give details to the doc, which i did. but by then it was too late. from the moment you open your mouth to the paramedics, you can pigeon holed and so i was put in the "chest pain" pigeon hole and run thru the mindless one size fits none protocol before i ever even got to see the doc.
my pressure was still at 190/100. he offered to bring it down by iv, but it wasn't clear what would happen when i got home. they oral meds they suggested for home would have killed me since had potassium in it, which makes me sick. so i had to decline. I thought they should have admitted me, as much as I don't like hospitals. So instead, having judged that I did not have a heart attack, they released me, saying to see both endocrninologist and cardiologist in the next 2 days; yeah right. we know how new patient appts go.
so been non stop on the phone trying to arrange things. for once, people have been helpful since they all agree this is not a state I should have to stay in for long as its damaging.
too much to say, but that's enuf since have no idea how this relates to the cfs, except that 3-4 years ago something started changing when i got these attacks. even between attacks my synmpatehetic nervous system never seems to fully close off. I was reading some threads by people here with neural autoantibodies and a simliar sounding case that also started with a herpes virus.
lesson learned: if i have to go to the ER ever again, do whatever it takes to get put in the pigeon hole i think will be most productive for me, even if it means not mentioning symptoms at first that might incorrectly put me in a more popular but less useful bin. So i should have said "I suspect andrenergic storm", not "my heart is pounding" (I happen to hear my heart when my bp goes up but everyone thinks of bp as "silent' so they misterpreted my statement). Still can't beleive they let me go in that state.