Jesse2233
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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I am missing how to let people know which Dr I see, and perhaps they want to consider?
My impression is that the old Co-cure website is not readily available? I know I found it helpful many years ago, think it needs to be backed up/updated?
GG
@Jesse2233 - This is great to be able to see see these doctors on a map. Unfortunately, this list of doctors with a specialization or interest in this illness is so small and to add to that issue - there is one doctor on the map that I am aware is no longer practicing. See info. on Dr. Anthony Komaroff’s retirement from practice inNovember 2016. See, https://www.askdoctork.com/
Are you going to try to set up similar maps for other countries?
See, Reply #4 above.Unfortunately,I am disappointed to see doctors such as KDM included with the science baseddoctors.
@*GG* - I thought the Co-cure site may not have been updated since the owner/manager of the site became ill about 2 years ago and sadly passed away in November 2016. See, http://forums.phoenixrising.me/inde...-of-raymond-f-colliton-co-cure-project.42737/I am missing how to let people know which Dr I see, and perhaps they want to consider?
My impression is that the old Co-cure website is not readily available? I know I found it helpful many years ago, think it needs to be backed up/updated?
GG
@Jesse2233 - Feel free to start a “Conversation” (PM) with me when you are ready to discuss getting some help with this project.@Wally these are all great ideas! yes to everything
@Jesse2233 - I feel like I have had a PM with someone from South America, I think there were from Brazil. I will check to see if I saved this conversation or perhaps it was on another site. Anyhow, perhaps a better way to see if anyone can help with this region is to start a new thread asking if there are any Forum members from South America, who might be interested in providing information for your map project identifying ME/CFS doctors in this part of the world.Yes I plan on doing one for Europe, Africa, Oceania, and Asia
@Jesse2233 - I am not familiar with South America unfortunately
Dr. Peter Rowe, Johns Hopkins, Baltimore, MD.Just reply to this thread if you've got someone I should add