Nielk
Senior Member
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Well if the company make the drug, that's a start....I know, talk about odds being stacked against us....i really really wish he would get some money to do the trials that he wants.
the second autism trial fell apart
the first cfs/me trial didnt happen
the drug company that is going to make suramin will take 2 years to do it
im so glad he joined ron davis's team at the OMF, but their grant got rejected too.
Aargh!