- Messages
- 48
- Location
- The Netherlands
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Although generally excellent I am concerned at the characterisation of the events of 1988 as described at about 19.10 where he says that under the influence of the English the Americans decided that they would downplay the concept of ME and replace it with CFS.
Is this not a reversal of the truth? An English member of the committee had to resign rather than put his name to the report. Possibly influence passed in the opposite direction later.
The Jim Faas' bit on rulings by the Supreme Administrative Court (via google translate) is interesting. Does anyone have more details on this?
https://eenvandaag.avrotros.nl/item/grote-controverse-over-behandeling-chronische-vermoeidheid/
Translate: https://translate.google.co.uk/translate?sl=auto&tl=en&js=y&prev=_t&hl=en&ie=UTF-8&u=https://eenvandaag.avrotros.nl/item/grote-controverse-over-behandeling-chronische-vermoeidheid/&edit-text=&act=url
Part 2, Amsterdam, october 13 2017
I'm not entirely sure how to take your comment because I can't see how firmly your tongue is in your cheek.Big reveal: James Coyne had shared wine with Michael Sharpe, been at a dinner with Trudie Chalder and was in regular contact with Simon Wessely. He must have had an awakening at some point...